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The INCLUDE study

Overview

In the INCLUDE study we aim to understand the impact of the Covid-19 epidemic and the resulting restrictions on people with dementia and their carers, and to develop resources to address the negative and potentially harmful effects of this situation. We will invite people with dementia and carers participating in the ongoing IDEAL programme to take part in INCLUDE.

The INCLUDE study, is Led by Prof Linda Clare at the University of Exeter, Dr Catherine Quinn, from the Centre of Applied Dementia Studies, is a Co-Investigator on INCLUDE. The study involves contributions from researchers at Brunel University London, Newcastle University, Swansea University and Manchester University, in partnership with Alzheimer’s Society and Innovations in Dementia CIC.

Read our report on the experience of IDEAL cohort participants, both people with dementia and carers, during the COVID-19 pandemic.

Elderly person sitting on sofa knitting - photo copyright by Cathy Greenblat

©Cathy Greenblat Photography

Aims

The goals of INCLUDE are:

  • To identify the impact of COVID-19 on people with dementia and carers.
  • To understand reciprocal dyadic influences - how a given impact on the person with dementia affects the carer and vice versa.
  • To build on this evidence to create resources to support the social, mental and physical health and relationships of community-dwelling people with dementia and their family carers and provide guidance to health, social care and voluntary sector staff.

Contact

To find out more about the INCLUDE study please visit the study website.

The INCLUDE team can be contacted on IDEAL@exeter.ac.uk and Dr Catherine Quinn can be contacted on c.quinn1@bradford.ac.uk.

Acknowledgements

INCLUDE is funded by the Economic and Social Research Council (ESRC) through grant ES/V004964/1.

The INCLUDE leaflets were part-funded by the National Institute for Health Research (NIHR) and is supported by the NIHR Older People and Policy Research Unit and the NIHR Applied Research Collaboration South-West Peninsula.