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Experts by Experience

The involvement of people affected by dementia, their families, health care professionals and volunteers is vital in all areas of our work.

Our Experts by Experience group work together with us in research, education, and training. There are a range of opportunities for people to get involved, which include:

  • Creating, checking and marking the courses we provide
  • Advising us and working with us on the development and carrying out of current and future research
  • Working with us to improve dementia care
  • Training members of the care workforce with us
  • Raising awareness and challenging stigma

Everyone is welcome to become an Expert by Experience and we are committed to involving people with dementia from diagnosis onwards. We are particularly keen to recruit people whose lives have been touched by dementia but whose voices are less often heard, including women, people over 80, members of the Black, Asian, Eastern European communities, those who live in care homes and other local communities, and members of LGBTQ groups.

Our Experts by Experience hold regular events at the University and online, especially during the COVID-19 pandemic. We also publish a quarterly newsletter written with people with dementia, family carers and our team at the University.

To find out how to get involved, contact Clare Mason on or fill in our simple form.

You can also check out our Experts by Experience Facebook page.

Meet some of our Experts by Experience

Experts by Experience Newsletter Spring 2021

If you require this information in an alternative format, please contact our team.