About the project
Led by Dr Mary O’Malley and, Network member, Professor Jacqueline Parkes from the University of Northampton, the DEFIN-YD Project aims to share knowledge about young dementia research and to create a younger people with dementia and their families’ public and patient involvement (PPI) network in the North (Bradford), Midlands (Northampton) and South (London) of England. The aim is to develop ideas for future research in this area and provide a reference group to support researchers developing projects in this field.
There is a recognised gap in this area, with younger people with dementia reporting that they do not know where to find information on social care/health and wellbeing research, or how to be involved as participants or PPI representatives and co-creators in dementia research. This project therefore aims to address this gap and provide a valuable resource to support both those living with young onset dementia to gain knowledge about social care, well-being, and health research in dementia and how it may be of benefit to them, to provide a greater understanding of what taking part in research means, the value of taking part, and how to get involved.
If you would like any more information on the project, please email Mary O'Malley.