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researcher

Dr Catherine Quinn

Associate Professor

Faculty/Dept/School The Centre for Applied Dementia Studies
(Faculty of Health Studies)
Emailc.quinn1@bradford.ac.uk
Telephone +441274 236593

Biography

Dr Catherine Quinn is an Associate Professor at the Centre of Applied Dementia Studies at the University of Bradford (https://www.bradford.ac.uk/dementia/ ) where she teaches modules on post-diagnostic support for people living with dementia. Catherine is currently Co-PI on the DYNAMIC study which focuses on improving social care planning and provision for people with young onset dementia and their families. She is also a member of the NIHR Policy Research Unit in Dementia and Neurodegeneration (DeNPRU Exeter). Catherine is the Bradford University Healthy Ageing Theme Lead for Wolfson Centre for Applied Health Research. She is a member of the NIHR Dementias Portfolio Development Group and the Older People’s theme of the NIHR Applied Research Collaboration (ARC), Yorkshire & Humber. She is also a Fellow of Advance HE.

Catherine’s research focuses on improving the quality of life of those affected by dementia. First, through gaining a better understanding of the experiences of those affected by dementia and the factors that affect their quality of life. Second, by developing interventions to improve the quality of life of those affected by dementia. She has a particular interest in the experiences of carers, positive experiences in providing care and relationship dynamics. She has expertise in cohorts, qualitative methodology, and patient and public involvement. She is involved in major research studies.  

Current projects include:   ·        

  • Co-PI on the DYNAMIC study which focuses on improving social care planning and provision for people with young onset dementia and their families. ·         
  • Co-I on the longstanding IDEAL programme, which is the largest cohort study of living well with dementia in Great Britain. ·         
  • Co-I on the ENLIVEN study which works with small businesses to make the wellbeing benefits of outdoor activity more accessible to older people with cognitive impairment.
  • Co-I on the INCLUDE study. This study explores the impact of the COVID-19 pandemic on people with dementia and carers who are taking part in the IDEAL progarmme. 
  • Co-I on the MAGNET study which is developing an intervention to support medication self-management in dementia.
  • Co-I on the SIDECAR study which focuses on the implementation of a carer quality of life measure in carer organisations.   
Catherine has also involved in a involved in a number of other networks: ·             
  • Peer-reviewer for the World Health Organisation Global Dementia Observatory.
  • Editor for Cochrane Dementia and Cognitive Improvement group.

Teaching

Teaching interests

Current Module leadership

DEM7024-C: Psychosocial and pharmacological support (Postgraduate Certificate for Practitioners with Advanced or Extended roles in dementia) 

DEM7025-C: Post-diagnostic support and living well with dementia (MSc Advanced Dementia Studies) 

Previous module leadership

DEM7014-C (maternity cover): Evidence Appraisal and Synthesis (MSc Advanced Dementia Studies)

DEM7009-C People with dementia and their families: Communication and inclusion (MSc Advanced Dementia Studies)

MSc Dissertation students

I supervise a number of dissertation students on the MSc Advanced Dementia Studies. Recent projects include:

  • The use of robotic animals within care homes.
  • The use of reflective team discussions in improving dementia care
Current PhD students
  • 2021: Associate supervisor for Jia Yen Eng PhD on "Supporting the well-being of care staff in Singapore"
  • 2019: Principal supervisor for Alison Ellwood. PhD on "The influence of psychological and social factors on the lived experience of people living with co-existent physical frailty and cognitive impairment".
Previous PhD students

  • 2019-2022: Associate supervisor for Oladayo Bifarin. PhD entitled "Supporting carers in the Chinese workforce'"
  • 2018-2020: Principal supervisor for Suzanne Hill. PhD entitled 'Investigating the quality and continuity of medication management when people living with dementia move be tween the care home and hospital setting' 
  • 2012- 2015: Associate supervisor for Carol Opdebeeck. PhD entitled ‘Cognitive Reserve, mood and cognitive function in later life’  

Professional activities

  • British Society of Gerontology, Member
  • British Psychological Society, Member
  • INTERDEM (Early detection and timely INTERvention in DEMentia) , Member

Publications

TitleHealth conditions in spousal caregivers of people with dementia and their relationships with stress, caregiving experiences, and social networks: longitudinal findings from the IDEAL programme (2024)
AuthorsSabatini, S., Martyr, A., Hunt, A., Gamble, L. D., Matthews, F. E., Thom, J. M., Jones, R. W., Allan, L., Knapp, M., Quinn, C., Victor, C., Pentecost, C., Rusted, J. M., Morris, R. G., & Clare, L.
JournalBMC Geriatrics
DOIhttps://doi.org/10.1186/s12877-024-04707-w
 
TitleLiving well with dementia: An exploratory matched analysis of minority ethnic and white people with dementia and carers participating in the IDEAL programme. (2024)
AuthorsVictor CR;Gamble LD;Pentecost C;Quinn C;Charlwood C;Matthews FE;Clare L;
JournalInternational Journal of Geriatric Psychiatry
DOI10.1002/gps.6048
 
TitleA participatory approach to understand what might be most meaningful to people living with dementia in a positive psychology intervention. (2024)
AuthorsJackman V;Wolverson E;Clarke C;Quinn C;
JournalAging and Mental Health
DOI10.1080/13607863.2023.2299967
 
TitleSocial care planning and provision for people with young onset dementia and their families: Protocol for the DYNAMIC study. (2024)
AuthorsQuinn C;Young H;Gridley K;Stamou V;Mason C;Oyebode J;
JournalPLoS ONE
DOI10.1371/journal.pone.0297747
 
TitleNavigating the COVID-19 pandemic two years on: experiences of carers of people with dementia from the British IDEAL cohort (2023)
AuthorsCollins, R., Dawson, E., Pentecost, C., Stapley, S., Quinn, C., Charlwood, C., Allan, L., Victor, C., & Clare, L.
JournalInternational Journal of Care and Caring
DOI10.1332/239788223x16893442145108
 
TitleCaring beyond capacity’ during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort (2023)
AuthorsStapley, S., Pentecost, C., Collins, R., Quinn, C., Dawson, E., Thom, J. M., & Clare, L.
JournalInternational Journal of Care and Caring
DOIhttps://doi.org/10.1332/239788221X16819328227036
 
Title Innovations in dementia and ageing care (2023)
AuthorsQuinn, C., Wolverson, E., & Mountain, G
JournalFrontiers In Rehabilitation Sciences
 
TitleDyadic perspectives on loneliness and social isolation among people with dementia and spousal carers: findings from the IDEAL programme. (2023)
AuthorsRippon I;Victor CR;Martyr A;Matthews FE;Quinn C;Rusted JM;Jones RW;Collins R;van Horik J;Pentecost C;Allan L;Clare L; ;
JournalAging and Mental Health
DOI10.1080/13607863.2023.2286618
 
TitleMethods and approaches to facilitate inclusion of the views, perspectives and preferences of people with moderate-to-severe dementia in research: a mixed-methods systematic review (2023)
AuthorsCollins, R., Martyr, A., Hunt, A., Quinn, C., Pentecost, C., Hughes, J. C., & Clare L.
JournalInternational journal of older people nursing
 
TitleDyadic influences on awareness of condition in people with dementia: Findings from the 1 IDEAL cohort (2023)
AuthorsAlexander, C. M., Martyr, A., Gamble, L. D., Hunt, A., Quinn, C., Pentecost, C., Morris, R. G., & Clare L.
JournalFrontiers in Aging Neuroscience
 
TitleThe precariousness of living with, and caring for people with, dementia: Insights from the IDEAL programme. (2023)
AuthorsHillman A;Jones IR;Quinn C;Pentecost C;Stapley S;Charlwood C;Clare L;
JournalSocial Science and Medicine
DOI10.1016/j.socscimed.2023.116098
 
TitleProvision of Outdoor Nature-Based Activity for Older People with Cognitive Impairment: A Scoping Review from the ENLIVEN Project (2023)
AuthorsCollins, R., Owen, S., Opdebeeck, C., Ledingham, K., Connell, J., Quinn, C., Page, S., Clare, L., & Lu, N.
JournalHealth and Social Care in the Community
DOIhttps://doi.org/10.1155/2023/4574072
 
TitleEvaluating 'living well' with mild-to-moderate dementia: Co-production and validation of the IDEAL My Life Questionnaire. (2023)
AuthorsClare L;Pentecost C;Collins R;Martyr A;Litherland R;Morris RG;Quinn C;Gamble LD;Sabatini S;Victor C;
JournalDementia
DOI10.1177/14713012231188502
 
TitleNavigating the coronavirus pandemic 2 years on: Experiences of people with dementia from the British IDEAL cohort. (2023)
AuthorsDawson E;Collins R;Pentecost C;Stapley S;Quinn C;Charlwood C;Victor C;Clare L;
JournalDementia
DOI10.1177/14713012231158215
 
TitleExploration of meaning, motivation, and preparedness to care amongst the one-child policy generation in China. (2023)
AuthorsBifarin O;Quinn C;Breen L;Yu L;Oyebode J;
JournalInternational Journal of Geriatric Psychiatry
DOI10.1002/gps.5887
 
TitleResilience in caregivers of people with mild-to-moderate dementia: findings from the IDEAL cohort. (2023)
AuthorsMartyr A;Rusted JM;Quinn C;Gamble LD;Collins R;Morris RG;Clare L;
JournalBMC Geriatrics
DOI10.1186/s12877-023-04549-y
 
TitlePredictors of awareness of functional ability in people with dementia: the contribution of personality, cognition, and neuropsychiatric symptoms. Findings from the IDEAL programme. (2022)
Authors Martyr, A., Gamble, L.D., Nelis, S.M., Collins, R., Alexander, C.M., Morris, R.G., Quinn, C., Pentecost, C., Rusted, J.M., Victor, C., Thom, J.M., Matthews, F.E., Clare, L., & on behalf of the IDEAL study team.
JournalDementia and Geriatric Cognitive Disorders
 
TitleLiving with dementia during the coronavirus pandemic: insights into identity from the IDEAL cohort (2022)
AuthorsStapley, S., Pentecost, C., Collins, R., Quinn, C., Dawson, E., Morris, R., Sabatini, S., Thom, J. & Clare, L.
JournalAGEING & SOCIETY
 
TitleLongitudinal trajectories of quality of life among people with mild-to-moderate dementia- a latent growth model approach with IDEAL cohort study data (2022)
AuthorsClare, L., Gamble, L.D., Martyr, A., Sabatini, S., Nelis, S.M., Quinn, C., Pentecost, C., Victor, C., Jones, R.W., Jones, I.R., Knapp, M., Litherland, R., Morris, R.G., Rusted, J.M., Thom, J.M., Collins, R., Henderson, C., & Matthews, F.E., on behalf of the IDEAL study team
JournalJournals of Gerontology - Series B Psychological Sciences and Social Sciences
 
TitleEffects of social restrictions on people with dementia and carers during the pre-vaccine phase of the COVID-19 pandemic Experiences of IDEAL cohort participants (2022)
AuthorsPentecost, C., Collins, R., Stapley, S., Victor, C., Quinn, C., Hillman, A., Litherland, R., Allan, L., Clare, Li.
JournalHealth and Social Care in the Community
 
TitleMethods and approaches for enhancing communication with people with moderate-to-severe dementia that can facilitate their inclusion in research and service evaluation findings from the IDEAL programme (2022)
AuthorsCollins, R., Hunt, A., Quinn, C., Martyr, A., Pentecost, C. & Clare, L.
JournalDementia
 
TitlePositive experiences in dementia caregiving: findings from the IDEAL programme (2022)
AuthorsQuinn, C., Toms, G., Rippon, I., Nelis, S.M., Henderson, C., Morris, R.G., Rusted, J.M., Thom, J.M., van den Heuvel, E.A., Victor, C., & Clare, L., on behalf of the IDEAL programme team
JournalAGEING & SOCIETY
 
TitleThe use and costs of paid and unpaid care for people with dementia longitudinal findings from the IDEAL cohort programme (2022)
AuthorsHenderson, C., Knapp, M., Martyr, A., Gamble, L. D., Nelis, S. M., Quinn, C., Pentecost, C., Collins, R., Wu, Y-. T., Jones, I. R., Victor, C. R., Pickett, J. A., Jones, R. W., Matthews, F. E., Morris, R. G., Rusted, J., Thom, J. M., Clare, L.
JournalJournal of Alzheimer's Disease
DOIhttps://doi.org/10.3233/JAD-215117
 
TitleImpact of COVID-19 on carers of people with dementia in the community: Findings from the British IDEAL cohort (2022)
AuthorsQuinn, C., Gamble, L. D., Parker, S., Martyr, A., Collins, R., Victor, C., Dawson, E., Hunt, A., Pentecost, C., Allan, L., & Clare, L.
JournalInternational Journal of Geriatric Psychiatry
 
TitleLimited receipt of support services among people with mild-to-moderate dementia- findings from the IDEAL cohort (2022)
AuthorsJayden O. van Horik Rachel Collins, Anthony Martyr, Catherine Henderson, Roy W Jones, Martin Knapp, Catherine Quinn, Jeanette M. Thom, Christina Victor and Linda Clare on behalf of the IDEAL Programme Team
JournalInternational Journal of Geriatric Psychiatry
 
TitleInterventions for self-management of medicines for community dwelling people with dementia, mild cognitive impairment and family carers: a systematic review (2022)
AuthorsPowell, C; Tomlinson, J; Quinn, C; Fylan, B
JournalAge and Ageing
DOIhttps://doi.org/10.1093/ageing/afac089
 
TitleProfiles of social, cultural, and economic capital as longitudinal predictors of stress, positive experiences of caring, and depression among spousal carers of people with dementia. (2022)
AuthorsSabatini S;Martyr A;Gamble LD;Jones IR;Collins R;Matthews FE;Victor CR;Quinn C;Pentecost C;Thom JM;Clare L;
JournalAging and Mental Health
DOI10.1080/13607863.2022.2098920
 
TitleA comparison of well-being of carers of people with dementia and their ability to manage before and during the COVID-19 pandemic: findings from the IDEAL study (2022)
AuthorsLaura D Gamble, Sophie Parker, Catherine Quinn, Holly Q Bennett, Anthony Martyr, Serena Sabatini, Claire Pentecost, Rachel Collins, Eleanor Dawson, Anna Hunt, Louise Allan, Alistair Burns, Rachael Litherland, Christina Victor, Fiona E Matthews, Linda Clare
JournalAmerican Journal of Alzheimer's Disease
 
TitleMinimal Impact of COVID-19 Pandemic on the Mental Health and Wellbeing of People Living With Dementia Analysis of Matched Longitudinal Data From the IDEAL Study (2022)
AuthorsSabatini, S., Bennett, H. Q., Martyr, A., Collins, R., Gamble, L. D., Matthews, F. E., Pentecost, C., Dawson, E., Hunt, A., Parker, S., Allan, L., Burns, A., Litherland, R., Quinn, C., & Clare, L.
JournalFrontiers in Psychiatry
DOIhttps://doi.org/10.3389/fpsyt.2022.849808
 
TitleAttitudes toward own aging and cognition among individuals living with and without dementia: findings from the IDEAL programme and the PROTECT study. (2022)
AuthorsSabatini S;Martyr A;Ukoumunne OC;Ballard C;Collins R;Pentecost C;Rusted JM;Quinn C;Anstey KJ;Kim S;Corbett A;Brooker H;Clare L;
JournalBMC Geriatrics
DOI10.1186/s12877-022-03336-5
 
TitleLiving with dementia under COVID-19 restrictions Coping and support needs among people with dementia and carers from the IDEAL cohort (2021)
AuthorsGareth O’Rourke, Claire Pentecost, Eleanor van den Heuvel, Christina Victor, Catherine Quinn, Alexandra Hillman, Rachael Litherland and Linda Clare
JournalAgeing and Society
 
TitleDoes awareness of condition help people with mild-to-moderate dementia to live well? (2021)
AuthorsAlexander, C. M., Martyr, A., Gamble, L. D., Savage, S. A., Quinn, C., Morris, R. G., Collins, R., & Clare, L.
JournalBMC Geriatrics
 
TitlePsychological and social factors associated with coexisting frailty and cognitive impairment: A systematic review (2021)
AuthorsEllwood, A., Mountain, G. & Quinn, C.
JournalResearch on Aging
 
TitlePsychological processes in adapting to dementia: illness representations among the IDEAL cohort (2021)
AuthorsClare, L., Gamble, L., Martyr, A., Quinn, C., Litherland, R., Morris, R. G., Jones, I.R., & Matthews, F. E
JournalPsychology and Aging
DOI10.1037/pag0000650
 
Title Stressors and coping mechanisms of family care-givers of older relatives living with long-term conditions in mainland China: A scoping review of the evidence. (2021)
AuthorsBífárìn, O., Quinn, C., Breen, L., Wu, C., Ke, M., Yu, L., & Oyebode, J
JournalAGEING & SOCIETY
PublisherCambridge University Press
DOIdoi:10.1017/S0144686X21000817
 
TitleLiving well with dementia: what is possible and how to promote it (2021)
AuthorsQuinn, C., Pickett, J. A., Litherland, R., Morris, R., Martyr, A., & Clare, L
JournalInternational Journal of Geriatric Psychiatry
 
TitleCommunity Ageing Research 75+ (CARE75+) REMOTE study: a remote model of recruitment and assessment of the health, well-being and social circumstances of older people (2021)
AuthorsBrown, L., Heaven, A., Quinn, C., Goodwin, V., Chew-Graham, C., Mahmood, F., Hallas, S., Jacob, I., Brundle, C., Best, K., Daffu-O'Reilly, A., Spilsbury, K., Young, T. A., Hawkins, R., Hanratty, B., Teale, E., & Clegg, A.
JournalBMJ Open
 
TitleThe perceived availability of neighbourhood green and blue spaces and its association with quality of life in people with dementia results from the Improving the Experience of Dementia and Enhancing Active Life (IDEAL) study (2021)
AuthorsWu, Y.T., Clare, L., Jones, I. R., Nelis, S. M., Quinn, C., Martyr, A., Victor, C. R., Lamont, R. A., Rippon, I., & Matthews, F
JournalSocial Psychiatry and Psychiatric Epidemiology
 
TitleWhat are the benefits of using robotic animals with people with dementia living in residential care settings (2021)
AuthorsSmall. S. Quinn, C.
JournalJournal of Dementia Care
PublisherJournal of Dementia Care
 
TitleDeveloping supportive local communities Perspectives from people with dementia and carers participating in the IDEAL programme (2021)
AuthorsQuinn. C., Hart, N., Hendrson, C., Litherland, R., Pickett., J. & Clare, L.
JournalJournal of Aging and Social Policy
 
TitleImpact of COVID-19 on ‘living well’ with mild-to-moderate dementia in the community findings from the IDEAL cohort (2021)
AuthorsClare, L., Martyr, A., Gamble, L.D., Pentecost, C., Collins, R., Dawson, E., Hunt, A., Parker, S., Allan, L., Burns, A., Hillman, A., Litherland, R., Quinn, C., Mathews, F.E., & Victor, C.
JournalJournal of Alzheimer's disease : JAD
DOIdoi: 10.3233/JAD-215095
 
TitleThe role of subjective social status in living well for carers of people with dementia findings from the IDEAL study (2021)
AuthorsVictor, C., Rippon, I., Quinn, C., Nelis, S. M., Martyr, A., Matthews, F. E., & Clare, L.
JournalInternational Journal of Care and Caring
 
TitleThe prevalence and predictors of loneliness in caregivers of people with dementia findings from the IDEAL programme (2020)
AuthorsVictor CR Rippon I Quinn C Nelis SM Martyr A Hart N Lamont R Clare L
JournalAging and Mental Health
DOI10.1080/13607863.2020.1753014
 
TitleFactors associated with self and informant ratings of quality of life, well being and life satisfaction in people with mild to moderate dementia results from the Improving the experience of Dementia and Enhancing Active Life programme (2020)
AuthorsYu-Tzu Wu, Sharon M Nelis, Catherine Quinn, Anthony Martyr, Ian R Jones, Christina R Victor, Martin Knapp, Catherine Henderson, John V Hindle, Roy W Jones, Michael D Kopelman, Robin G Morris, James A Pickett, Jennifer M Rusted, Jeanette M Thom, Rachael Litherland, Fiona E Matthews, Linda Clare, the IDEAL Programme team, ,
JournalAge and Ageing
DOI10.1093/ageing/afz177
 
TitleLiving Alone with Mild-To-Moderate Dementia: Findings from the IDEAL Cohort. (2020)
AuthorsClare L;Martyr A;Henderson C;Gamble L;Matthews FE;Quinn C;Nelis SM;Rusted J;Thom J;Knapp M;Hart N;Victor C;
JournalJournal of Alzheimer's Disease
DOI10.3233/JAD-200638
 
TitleInvolvement in meetings and events Tips for good practice (2020)
AuthorsMason, C., Quinn, C., Andrews, M., Parveen, S., & Litherland, R.
JournalJournal of Dementia Care
 
TitleImproving the quality of insulin prescribing for people with diabetes being discharged from hospital (2019)
AuthorsBain, A.; Silcock, Jonathan; Kavanagh, S.; Quinn, Gemma L.; Fonseca, I.
 
TitleUse and costs of services and unpaid care for people with mild-to-moderate dementia: Baseline results from the IDEAL cohort study (2019)
AuthorsHenderson C.;Knapp M.;Nelis S.;Quinn C.;Martyr A.;Wu Y.;Jones I.;Victor C.;Pickett J.;Hindle J.;Jones R.;Kopelman M.;Matthews F.;Morris R.;Rusted J.;Thom J.;Clare L.
JournalAlzheimer'S And Dementia: Translational Research And Clinical Interventions
DOI10.1016/j.trci.2019.09.012
 
TitleThe impact of relationship quality on life satisfaction and well-being in dementia caregiving dyads: findings from the IDEAL study. (2019)
AuthorsRippon I;Quinn C;Martyr A;Morris R;Nelis SM;Jones IR;Victor CR;Clare L;
JournalAging and Mental Health
DOI10.1080/13607863.2019.1617238
 
TitleCaregiver influences on 'living well' for people with dementia: Findings from the IDEAL study. (2019)
AuthorsQuinn C;Nelis SM;Martyr A;Morris RG;Victor C;Clare L;
JournalAging and Mental Health
DOI10.1080/13607863.2019.1602590
 
TitlePsychological predictors of 'living well' with dementia: findings from the IDEAL study. (2019)
AuthorsLamont RA;Nelis SM;Quinn C;Martyr A;Rippon I;Kopelman MD;Hindle JV;Jones RW;Litherland R;Clare L;
JournalAging and Mental Health
DOI10.1080/13607863.2019.1566811
 
TitleA comprehensive model of factors associated with subjective perceptions of "living well" with dementia: findings from the IDEAL study (2019)
AuthorsClare, L.; Wu, Y-T.; Jones, I.R.; Victor, C.R.; Nelis, S.M.; Martyr, A.; Quinn, Catherine; Litherland, R.; Pickett, J.A.; Hindle, J.V.; Jones, R.W.; Knapp, M.; Kopelman, M.D.; Morris, R.G.; Rusted, J.M.; Thom, J.M.; Lamont, R.A.; Henderson, C.; Rippon, I.; Hillman, A.; Matthews, F.E.
JournalAlzheimer Disease and Associated Disorders
DOIdoi:10.1097/WAD.0000000000000286
 
TitleA Comprehensive Model of Factors Associated with Capability to "live Well" for Family Caregivers of People Living with Mild-to-Moderate Dementia: Findings from the IDEAL Study (2019)
AuthorsClare, L.; Wu, Y.-T.; Quinn, Catherine; Jones, I.R.; Victor, C.R.; Nelis, S.M.; Martyr, A.; Litherland, R.; Pickett, J.A.; Hindle, J.V.; Jones, R.W.; Knapp, M.; Kopelman, M.D.; Morris, R.G.; Rusted, J.M.; Thom, J.M.; Lamont, R.A.; Henderson, C.; Rippon, I.; Hillman, A.; Matthews, F.E.
JournalAlzheimer Disease and Associated Disorders
DOIdoi:10.1097/WAD.0000000000000285
 
TitleThe impact of comorbidity on the quality of life of people with dementia: findings from the IDEAL study (2019)
AuthorsNelis, S.M.; Wu, Y.-T.; Matthews, F.E.; Martyr, A.; Quinn, Catherine; Rippon, I.; Rusted, J.; Thom, J.M.; Kopelman, M.D.; Hindle, J.V.; Jones, R.W.; Clare, L.
JournalAge and Ageing
DOIhttps://doi.org/10.1093/ageing/afy155
 
TitleSelf-esteem, self-efficacy and optimism as psychological resources among family caregivers of people with dementia: findings from the IDEAL study (2019)
AuthorsLamont, R.A., Quinn, C., Nelis, S.M., Martyr, A., Rusted, J.M., Hindle, J.V., Longdon, B., Clare, L., & on behalf of the IDEAL study team.
JournalInternational Psychogeriatrics
DOI10.1017/S1041610219001236
 
TitleAll the world's a stage: Accounting for the dementia experience - insights from the IDEAL study (2019)
AuthorsHillman A.;Jones I.;Quinn C.;Nelis S.;Lamont R.;Clare L.
JournalQualitative Research
DOI10.1177/1468794119893607
 
TitleThe relationship between perceived functional difficulties and the ability to live well with mild-to-moderate dementia: Findings from the IDEAL programme. (2019)
AuthorsMartyr A;Nelis SM;Quinn C;Rusted JM;Morris RG;Clare L; ;
JournalInternational Journal of Geriatric Psychiatry
DOI10.1002/gps.5128
 
TitleInfluence of positive and negative dimensions of dementia caregiving on caregiver well-being and satisfaction with life: Findings from the IDEAL study (2019)
AuthorsCatherine Quinn, Sharon M Nelis, Anthony Martyr, Christina Victor, Robin G. Morris, and Linda Clare on behalf of the IDEAL study team
JournalThe American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry
DOIhttps://doi.org/10.1016/j.jagp.2019.02.005
 
TitleCaregivers' beliefs about dementia: findings from the IDEAL study (2019)
AuthorsQuinn, Catherine; Jones, I.R.; Martyr, A.; Nelis, S.M.; Morris, R.G.; Clare, L.; IDEAL Study Team
JournalPsychology and Health
DOIhttps://doi.org/10.1080/08870446.2019.1597098
 
TitleProtocol for the IDEAL-2 longitudinal study: following the experiences of people with dementia and their primary carers to understand what contributes to living well with dementia and enhances active life. (2018)
AuthorsSilarova B;Nelis SM;Ashworth RM;Ballard C;Bieńkiewicz M;Henderson C;Hillman A;Hindle JV;Hughes JC;Lamont RA;Litherland R;Jones IR;Jones RW;Knapp M;Kotting P;Martyr A;Matthews FE;Morris RG;Quinn C;Regan J;Rusted JM;van den Heuvel EA;Victor CR;Wu YT;Clare L;
JournalBMC Public Health
DOI10.1186/s12889-018-6129-7
 
TitleProtocol for the IDEAL-2 longitudinal study: following the experiences of people with dementia and their primary carers to understand what contributes to living well with dementia and enhances active life (2018)
AuthorsSilarova, B.; Nelis, S.M.; Ashworth, R.M.; Ballard, C.; Bienkiewicz, M.; Henderson, C.; Hillman, A.; Hindle, J.V.; Hughes, J.C.; Lamont, R.A.; Litherland, R.; Jones, I.R.; Jones, R.W.; Knapp, M.; Kotting, P.; Martyr, A.; Matthews, F.E.; Morris, R.G.; Quinn, Catherine; Regan, J.; Rusted, J.M.; van den Heuval, E.A.; Victor, C.R.; Wu, Y.-T.; Clare, L.
JournalBMC Public Health
DOIdoi:10.1186/s12889-018-6129-7
 
TitleDualities of dementia illness narratives and their role in a narrative economy (2018)
AuthorsHillman, A.; Jones, I.R.; Quinn, Catherine; Nelis, S.M.; Clare, L.
JournalSociology of Health and Illness
 
TitleBeliefs About Dementia: Development and Validation of the Representations and Adjustment to Dementia Index (RADIX) (2018)
AuthorsQuinn, Catherine; Morris, R.G.; Clare, L.
JournalThe American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry
DOI10.1016/j.jagp.2018.02.004
 
TitleInfluence of Positive Aspects of Dementia Caregiving on (2018)
AuthorsQuinn, C., & Toms, G.
JournalThe Gerontologist
DOI10.1093/geront/gny168
 
TitleInequalities in living well with dementia-The impact of deprivation on well-being, quality of life and life satisfaction: Results from the improving the experience of dementia and enhancing active life study (2018)
AuthorsWu, Y.-T.; Clare, L.; Jones, I.R.; Martyr, A.; Nelis, S.M.; Quinn, Catherine; Victor, C.R.; Lamont, R.A.; Rippon, I.; Matthews, F.E.; Improving the experience of Dementia and Enhancing Active Life (IDEAL) study
JournalInternational Journal of Geriatric Psychiatry
DOI10.1002/gps.4998
 
TitleReflections on PPI from the 'Action on Living Well: Asking You' advisory network of people with dementia and carers as part of the IDEAL study. (2018)
AuthorsLitherland R;Burton J;Cheeseman M;Campbell D;Hawkins M;Hawkins T;Oliver K;Scott D;Ward J;Nelis SM;Quinn C;Victor C;Clare L;
JournalDementia
DOI10.1177/1471301218789309
 
TitleReflections on PPI from the ‘Action on Living Well: Asking You’ advisory network of people with dementia and carers as part of the IDEAL study (2018)
AuthorsLitherland, R.; Burton, J.; Cheeseman, M.; Campbell, D.; Hawkins, M.; Hawkins, T.; Oliver, K.; Scott, D.; Ward, J.; Nelis, S.M.; Quinn, Catherine; Victor, C.; Clare, L.
JournalDementia
 
TitleLiving well with dementia: a systematic review and correlational meta-analysis of factors associated with quality of life, well-being and life satisfaction in people with dementia. (2018)
AuthorsMartyr A;Nelis SM;Quinn C;Wu YT;Lamont RA;Henderson C;Clarke R;Hindle JV;Thom JM;Jones IR;Morris RG;Rusted JM;Victor CR;Clare L;
JournalPsychological Medicine
DOI10.1017/S0033291718000405
 
TitleLiving well with dementia: a systematic review and correlational meta-analysis of factors associated with quality of life, well-being and life satisfaction in people with dementia (2018)
AuthorsMartyr, A.; Nelis, S.M.; Quinn, Catherine; Wu, Y.-T.; Lamont, R.A.; Henderson, C.; Clarke, R.; Hindle, J.V.; Thom, J.M.; Jones, I.R.; Morris, R.G.; Rusted, J.M.; Victor, C.R.; Clare, L.
JournalPsychological Medicine
DOI10.1017/S0033291718000405
 
TitleA Comprehensive Model of Factors Associated with Capability to "live Well" for Family Caregivers of People Living with Mild-to-Moderate Dementia: Findings from the IDEAL Study (2018)
AuthorsClare L.;Wu Y.;Quinn C.;Jones I.;Victor C.;Nelis S.;Martyr A.;Litherland R.;Pickett J.;Hindle J.;Jones R.;Knapp M.;Kopelman M.;Morris R.;Rusted J.;Thom J.;Lamont R.;Henderson C.;Rippon I.;Hillman A.;Matthews F.
JournalAlzheimer Disease and Associated Disorders
DOI10.1097/WAD.0000000000000285
 
TitleSocial Support and Attitudes to Aging in Later Life. (2017)
AuthorsLamont RA;Nelis SM;Quinn C;Clare L;
JournalInternational Journal of Aging and Human Development
DOI10.1177/0091415016668351
 
TitleIllness representations in caregivers of people with dementia (2017)
AuthorsQuinn, Catherine; Jones, I.R.; Clare, L.
JournalAging and Mental Health
 
TitleA self-management group for people with dementia (2016)
AuthorsQuinn, C.;Toms, G.;Davies, S.;Davies, M.;Clare, L.;
JournalJournal of Dementia Care
 
TitleExecutive control in older Welsh monolinguals and bilinguals (2016)
AuthorsClare L.;Whitaker C.;Martyr A.;Martin-Forbes P.;Bastable A.;Pye K.;Quinn C.;Thomas E.;Mueller Gathercole V.;Hindle J.
JournalJournal of Cognitive Psychology
DOI10.1080/20445911.2016.1148041
 
Title"I Don't Think of It As An Illness": Illness Representations in Mild to Moderate Dementia (2016)
AuthorsClare, L.; Quinn, Catherine; Jones, I.R.; Woods, R.T.
JournalJournal of Alzheimer's disease : JAD
 
TitleIs cognitive lifestyle associated with depressive thoughts and self-reported depressive symptoms in later life? (2016)
AuthorsOpdebeeck C;Quinn C;Nelis SM;Clare L;
JournalEuropean Journal of Ageing
DOI10.1007/s10433-015-0359-7
 
TitleBilingualism, executive control, and age at diagnosis among people with early-stage Alzheimer's disease in Wales. (2016)
AuthorsClare L;Whitaker CJ;Craik FI;Bialystok E;Martyr A;Martin-Forbes PA;Bastable AJ;Pye KL;Quinn C;Thomas EM;Gathercole VC;Hindle JV;
JournalJournal of Neuropsychology
DOI10.1111/jnp.12061
 
TitleA pilot randomized controlled trial of a self-management group intervention for people with early-stage dementia (The SMART study). (2016)
AuthorsQuinn C;Toms G;Jones C;Brand A;Edwards RT;Sanders F;Clare L;
JournalInternational Psychogeriatrics
DOI10.1017/S1041610215002094
 
TitleA Review of Self-Management Interventions for People With Dementia and Mild Cognitive Impairment. (2016)
AuthorsQuinn C;Toms G;Anderson D;Clare L;
JournalJournal Of Applied Gerontology : The Official Journal Of The Southern Gerontological Society
DOI10.1177/0733464814566852
 
TitleCurrent Practice in the Referral of Individuals with Suspected Dementia for Neuroimaging by General Practitioners in Ireland and Wales. (2016)
AuthorsCiblis AS;Butler ML;Quinn C;Clare L;Bokde AL;Mullins PG;McNulty JP;
JournalPLoS ONE
DOI10.1371/journal.pone.0151793
 
TitleBalancing needs: The role of motivations, meanings and relationship dynamics in the experience of informal caregivers of people with dementia (2015)
AuthorsQuinn C.;Clare L.;Woods R.
JournalDementia
DOI10.1177/1471301213495863
 
TitleHow does cognitive reserve impact on the relationships between mood, rumination, and cognitive function in later life? (2015)
AuthorsOpdebeeck C;Nelis SM;Quinn C;Clare L;
JournalAging and Mental Health
DOI10.1080/13607863.2014.962005
 
TitleDoes cognitive reserve moderate the association between mood and cognition? A systematic review (2015)
AuthorsOpdebeeck, C.;Quinn, C.;Nelis, S.M.;Clare, L.;
JournalReviews in Clinical Gerontology
DOI10.1017/S0959259815000155
 
TitleA systematic narrative review of support groups for people with dementia. (2015)
AuthorsToms GR;Clare L;Nixon J;Quinn C;
JournalInternational Psychogeriatrics
DOI10.1017/S1041610215000691
 
TitleHelp yourself: perspectives on self-management from people with dementia and their caregivers. (2015)
AuthorsToms GR;Quinn C;Anderson DE;Clare L;
JournalQualitative Health Research
DOI10.1177/1049732314549604
 
TitleA pilot randomized controlled trial of a self-management group intervention for people with early-stage dementia (The SMART study). (2015)
AuthorsQuinn C;Toms G;Jones C;Brand A;Edwards RT;Sanders F;Clare L;
JournalInternational Psychogeriatrics
DOI10.1017/S1041610215002094
 
TitleImproving the experience of dementia and enhancing active life--living well with dementia: study protocol for the IDEAL study. (2014)
AuthorsClare L;Nelis SM;Quinn C;Martyr A;Henderson C;Hindle JV;Jones IR;Jones RW;Knapp M;Kopelman MD;Morris RG;Pickett JA;Rusted JM;Savitch NM;Thom JM;Victor CR;
JournalHealth and Quality of Life Outcomes
DOI10.1186/s12955-014-0164-6
 
TitleSelf-management in early-stage dementia: a pilot randomised controlled trial of the efficacy and cost-effectiveness of a self-management group intervention (the SMART study). (2014)
AuthorsQuinn C;Anderson D;Toms G;Whitaker R;Edwards RT;Jones C;Clare L;
JournalTrials
DOI10.1186/1745-6215-15-74
 
TitleCare staff and family member perspectives on quality of life in people with very severe dementia in long-term care: a cross-sectional study. (2014)
AuthorsClare L;Quinn C;Hoare Z;Whitaker R;Woods RT;
JournalHealth and Quality of Life Outcomes
DOI10.1186/s12955-014-0175-3
 
Title'It's in the eyes': How family members and care staff understand awareness in people with severe dementia (2014)
AuthorsQuinn C.;Clare L.;Jelley H.;Bruce E.;Woods B.
JournalAging and Mental Health
DOI10.1080/13607863.2013.827627
 
TitleAwareCare: A pilot randomized controlled trial of an awareness-based staff training intervention to improve quality of life for residents with severe dementia in long-term care settings (2013)
AuthorsClare L.;Whitaker R.;Woods R.;Quinn C.;Jelley H.;Hoare Z.;Woods J.;Downs M.;Wilson B.
JournalInternational Psychogeriatrics
DOI10.1017/S1041610212001226
 
TitleNegotiating the balance: the triadic relationship between spousal caregivers, people with dementia and Admiral Nurses. (2013)
AuthorsQuinn C;Clare L;McGuinness T;Woods RT;
JournalDementia
DOI10.1177/1471301212437780
 
TitleWhat predicts whether caregivers of people with dementia find meaning in their role? (2012)
AuthorsQuinn C;Clare L;Woods RT;
JournalInternational Journal of Geriatric Psychiatry
DOI10.1002/gps.3773
 
TitleAwareCare: development and validation of an observational measure of awareness in people with severe dementia (2012)
AuthorsClare, L.; Whitaker, R.; Quinn, Catherine; Jelley, H.; Hoare, Z.; Woods, B.; Downs, Murna G.; Wilson, B.A.
JournalNeuropsychological Rehabilitation
 
TitleThe impact of relationships, motivations, and meanings on dementia caregiving outcomes. (2012)
AuthorsQuinn C;Clare L;McGuinness T;Woods RT;
JournalInternational Psychogeriatrics
DOI10.1017/S1041610212000889
 
TitleThe impact of motivations and meanings on the wellbeing of caregivers of people with dementia: a systematic review. (2010)
AuthorsQuinn C;Clare L;Woods RT;
JournalInternational Psychogeriatrics
DOI10.1017/S1041610209990810
 
TitleThe impact of the quality of relationship on the experiences and wellbeing of caregivers of people with dementia: a systematic review. (2009)
AuthorsQuinn C;Clare L;Woods B;
JournalAging and Mental Health
DOI10.1080/13607860802459799
 
TitleThe experience of providing care in the early stages of dementia: an interpretative phenomenological analysis. (2008)
AuthorsQuinn C;Clare L;Pearce A;van Dijkhuizen M;
JournalAging and Mental Health
DOI10.1080/13607860802380623
 

TitleTimely Psychosocial Interventions in Dementia Care: Evidence-Based Practice (2020)
AuthorsQuinn, C. & Clare, L.
JournalAwarecare: an awareness-based staff training intervention to improve quality of life for care home residents with severe dementia
PublisherJessica Kingsley
 
TitlePositive experiences in dementia caregiving (2016)
AuthorsQuinn, C.
JournalPositive Psychology Approaches to Dementia
PublisherJessica Kingsley
 
TitleInterpretative phenomenological analysis (2008)
AuthorsQuinn, C. & Clare, L.
JournalNursing Research: Designs and Methods
PublisherElsevier
 

TitleInformation and support interventions for informal caregivers of people with dementia (2007)
DOI10.1002/14651858.CD006440
 

Other typeOnline Database
TitleConducting interviews with people with dementia and their caregivers (2017)
JournalSage Research methods Cases
DOI10.4135/9781526404855
 
Other typeReviews
TitleInformation and support interventions for informal caregivers of people with dementia (2007)
AuthorsNelis S.;Quinn C.;Clare L.
JournalCochrane Database of Systematic Reviews
DOI10.1002/14651858.CD006440