Catherine Quinn

Lecturer (Centre of Applied Dem Studies)

RoleLecturer (Centre of Applied Dem Studies)
Faculty/Dept/SchoolFaculty of Health Studies / Centre for Applied Dementia Studies


Catherine’s interest in dementia and informal caregiving was initially founded her Master’s dissertation in which she analysed interviews with informal carers of with people with dementia. Her PhD in Psychology researched the role of motivations, meanings, and relationship quality in the experience of informal carers of people with dementia. This was a mixed-methods study, which involved informal carers, people with dementia, and Admiral Nurses.

Her interest in caregiving motivations and relationships led to her being a trial manager on a randomized controlled study which concerned improving care for people with advanced dementia residing in care homes (the AwareCare study: awareness in severe dementia). In this study she was involved in the development of the AwareCare observational tool (the AwareCare). After working on the AwareCare study, Catherine was awarded a grant to conduct a pilot trial of self-management in early-stage dementia (SMART). In this study she worked in collaboration with staff at Glan Traeth Memory clinic to develop a self-management intervention that could be offered within the memory clinic setting. During this period, she was also employed on the NeuroSKILL project and was involved in the development of training on neuroimaging in dementia. As part of this work she conducted research on the illness representations held by people with dementia and carers.

Her expertise in caregiving led to her being involved as a Co-Investigator on the IDEAL programme (living well with dementia). IDEAL is a 9-year research programme focused on ‘living well’ with dementia in Great Britain  This cohort study involves approximately 1547 people with dementia and 1283 informal carers at Time 1, who are followed up for five further time-points. Catherine is co-leading the work package on developing techniques for including the perspective of people with advanced dementia. Catherine works with the project involvement group, a group of people with dementia and carers who advise on different aspects of the project (the ALWAYs group; Action on Living Well: Asking You).


Peer Reviewed Journal
TitleProtocol for the IDEAL-2 longitudinal study: following the experiences of people with dementia and their primary carers to understand what contributes to living well with dementia and enhances active life. (2018)
AuthorsSilarova B;Nelis SM;Ashworth RM;Ballard C;Bieńkiewicz M;Henderson C;Hillman A;Hindle JV;Hughes JC;Lamont RA;Litherland R;Jones IR;Jones RW;Knapp M;Kotting P;Martyr A;Matthews FE;Morris RG;Quinn C;Regan J;Rusted JM;van den Heuvel EA;Victor CR;Wu YT;Clare L;
JournalBMC Public Health
TitleSelf-management in early-stage dementia: a pilot randomised controlled trial of the efficacy and cost-effectiveness of a self-management group intervention (the SMART study). (2014)
AuthorsQuinn C;Anderson D;Toms G;Whitaker R;Edwards RT;Jones C;Clare L;
TitleCare staff and family member perspectives on quality of life in people with very severe dementia in long-term care: a cross-sectional study. (2014)
AuthorsClare L;Quinn C;Hoare Z;Whitaker R;Woods RT;
JournalHealth and Quality of Life Outcomes
TitleImproving the experience of dementia and enhancing active life--living well with dementia: study protocol for the IDEAL study. (2014)
AuthorsClare L;Nelis SM;Quinn C;Martyr A;Henderson C;Hindle JV;Jones IR;Jones RW;Knapp M;Kopelman MD;Morris RG;Pickett JA;Rusted JM;Savitch NM;Thom JM;Victor CR;
JournalHealth and Quality of Life Outcomes
TitleSocial Support and Attitudes to Aging in Later Life. (2017)
AuthorsLamont RA;Nelis SM;Quinn C;Clare L;
JournalInternational Journal of Aging and Human Development
TitleHelp yourself: perspectives on self-management from people with dementia and their caregivers. (2015)
AuthorsToms GR;Quinn C;Anderson DE;Clare L;
JournalQualitative Health Research
TitleInfluence of Positive Aspects of Dementia Caregiving on (2018)
AuthorsQuinn, C., & Toms, G.
JournalThe Gerontologist
TitleCurrent Practice in the Referral of Individuals with Suspected Dementia for Neuroimaging by General Practitioners in Ireland and Wales. (2016)
AuthorsCiblis AS;Butler ML;Quinn C;Clare L;Bokde AL;Mullins PG;McNulty JP;
JournalPLoS ONE
TitleWhat predicts whether caregivers of people with dementia find meaning in their role? (2012)
AuthorsQuinn C;Clare L;Woods RT;
JournalInternational Journal of Geriatric Psychiatry
TitleThe impact of relationships, motivations, and meanings on dementia caregiving outcomes. (2012)
AuthorsQuinn C;Clare L;McGuinness T;Woods RT;
JournalInternational Psychogeriatrics
TitleA systematic narrative review of support groups for people with dementia. (2015)
AuthorsToms GR;Clare L;Nixon J;Quinn C;
JournalInternational Psychogeriatrics
TitleA pilot randomized controlled trial of a self-management group intervention for people with early-stage dementia (The SMART study). (2016)
AuthorsQuinn C;Toms G;Jones C;Brand A;Edwards RT;Sanders F;Clare L;
JournalInternational Psychogeriatrics
TitleAwareCare: A pilot randomized controlled trial of an awareness-based staff training intervention to improve quality of life for residents with severe dementia in long-term care settings (2013)
AuthorsClare L.;Whitaker R.;Woods R.;Quinn C.;Jelley H.;Hoare Z.;Woods J.;Downs M.;Wilson B.
JournalInternational Psychogeriatrics
Title"I Don't Think of It As An Illness": Illness Representations in Mild to Moderate Dementia (2016)
AuthorsClare, L.; Quinn, Catherine; Jones, I.R.; Woods, R.T.
JournalJournal of Alzheimer's Disease
TitleNegotiating the balance: the triadic relationship between spousal caregivers, people with dementia and Admiral Nurses. (2013)
AuthorsQuinn C;Clare L;McGuinness T;Woods RT;
TitleBalancing needs: The role of motivations, meanings and relationship dynamics in the experience of informal caregivers of people with dementia (2015)
AuthorsQuinn C.;Clare L.;Woods R.
TitleReflections on PPI from the 'Action on Living Well: Asking You' advisory network of people with dementia and carers as part of the IDEAL study. (2018)
AuthorsLitherland R;Burton J;Cheeseman M;Campbell D;Hawkins M;Hawkins T;Oliver K;Scott D;Ward J;Nelis SM;Quinn C;Victor C;Clare L;
TitleDoes cognitive reserve moderate the association between mood and cognition? A systematic review (2015)
AuthorsOpdebeeck, C.;Quinn, C.;Nelis, S.M.;Clare, L.;
JournalReviews in Clinical Gerontology
TitleAwareCare: Development and validation of an observational measure of awareness in people with severe dementia (2012)
AuthorsClare, L.;Whitaker, R.;Quinn, C.;Jelley, H.;Hoare, Z.;Woods, B.;Downs, M.;Wilson, B.;
JournalNeuropsychological Rehabilitation
TitleBilingualism, executive control, and age at diagnosis among people with early-stage Alzheimer's disease in Wales. (2016)
AuthorsClare L;Whitaker CJ;Craik FI;Bialystok E;Martyr A;Martin-Forbes PA;Bastable AJ;Pye KL;Quinn C;Thomas EM;Gathercole VC;Hindle JV;
JournalJournal of Neuropsychology
TitleIs cognitive lifestyle associated with depressive thoughts and self-reported depressive symptoms in later life? (2016)
AuthorsOpdebeeck C;Quinn C;Nelis SM;Clare L;
JournalEuropean Journal of Ageing
TitleA self-management group for people with dementia (2016)
AuthorsQuinn, C.;Toms, G.;Davies, S.;Davies, M.;Clare, L.;
JournalJournal of Dementia Care
TitleA self-management group for people with dementia (2016)
JournalJournal of Dementia Care
TitleExecutive control in older Welsh monolinguals and bilinguals (2016)
AuthorsClare L.;Whitaker C.;Martyr A.;Martin-Forbes P.;Bastable A.;Pye K.;Quinn C.;Thomas E.;Mueller Gathercole V.;Hindle J.
JournalJournal of Cognitive Psychology
TitleA Comprehensive Model of Factors Associated with Capability to "live Well" for Family Caregivers of People Living with Mild-to-Moderate Dementia: Findings from the IDEAL Study (2018)
AuthorsClare L.;Wu Y.;Quinn C.;Jones I.;Victor C.;Nelis S.;Martyr A.;Litherland R.;Pickett J.;Hindle J.;Jones R.;Knapp M.;Kopelman M.;Morris R.;Rusted J.;Thom J.;Lamont R.;Henderson C.;Rippon I.;Hillman A.;Matthews F.
JournalAlzheimer Disease and Associated Disorders
TitleThe impact of the quality of relationship on the experiences and wellbeing of caregivers of people with dementia: a systematic review. (2009)
AuthorsQuinn C;Clare L;Woods B;
JournalAging and Mental Health
TitleHow does cognitive reserve impact on the relationships between mood, rumination, and cognitive function in later life? (2015)
AuthorsOpdebeeck C;Nelis SM;Quinn C;Clare L;
JournalAging and Mental Health
Title'It's in the eyes': How family members and care staff understand awareness in people with severe dementia (2014)
AuthorsQuinn C.;Clare L.;Jelley H.;Bruce E.;Woods B.
JournalAging and Mental Health
TitleBeliefs About Dementia: Development and Validation of the Representations and Adjustment to Dementia Index (RADIX) (2018)
AuthorsQuinn, Catherine; Morris, R.G.; Clare, L.
JournalAmerican Journal of Geriatric Psychiatry
TitleA Review of Self-Management Interventions for People With Dementia and Mild Cognitive Impairment. (2016)
AuthorsQuinn C;Toms G;Anderson D;Clare L;
JournalJournal Of Applied Gerontology : The Official Journal Of The Southern Gerontological Society
TitleThe experience of providing care in the early stages of dementia: an interpretative phenomenological analysis. (2008)
AuthorsQuinn C;Clare L;Pearce A;van Dijkhuizen M;
TitleA pilot randomized controlled trial of a self-management group intervention for people with early-stage dementia (The SMART study). (2015)
AuthorsQuinn C;Toms G;Jones C;Brand A;Edwards RT;Sanders F;Clare L;
Book Chapter
TitleInterpretative phenomenological analysis (2008)
TitlePositive experiences in dementia caregiving (2016)
Published Report
TitleInformation and support interventions for informal caregivers of people with dementia (2007)
Other Publication
Other typeReviews
TitleInformation and support interventions for informal caregivers of people with dementia (2007)
AuthorsNelis S.;Quinn C.;Clare L.
JournalCochrane Database of Systematic Reviews
Other typeOnline Database
TitleConducting interviews with people with dementia and their caregivers (2017)
JournalSage Research methods Cases