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researcher

Dr Catherine Quinn

Lecturer (Centre of Applied Dem Studies)

Faculty/Dept/School The Centre for Applied Dementia Studies
(Faculty of Health Studies)
Emailc.quinn1@bradford.ac.uk
Telephone +441274 236593

Biography

I have been working in the dementia field for over 15 years. I was working as Senior Research Fellow before I joined the University of Bradford in November 2018 in my first lectureship post.  My research focuses on improving the quality of life of those affected by dementia. First, through gaining a better understanding of the experiences of those affected by dementia and the factors that affect their quality of life. Second, by developing interventions to improve the quality of life of those affected by dementia. I have a particular interest in the experiences of carers and both positive experiences in providing care and relationship dynamics. I have expertise in cohorts, qualitative methodology, and patient and public involvement. I have been involved in major research studies.

These include: ·        

  • The AwareCare study (trial manager): An awareness-based staff-training intervention designed to improve care for people with advanced dementia ·         
  • The SMART study (Principal Investigator): Pilot trial of a self-management intervention for people with early-stage dementia.
  • The IDEAL programme (Co-investigator): The IDEAL programme is funded through 2 stages. The IDEAL study (2018-2019, funded by NIHR/ESRC) is a five-year large-scale longitudinal cohort study of factors that influence the capacity to live well in people with dementia and carers. The IDEAL-2 study (2018-2022, funded by Alzheimer’s Society) further follows up the cohort with additional workstreams. I co-lead the workstream around developing techniques to facilitate the inclusion of the perspective with people with advanced dementia. ·         
  • The INCLUDE study (Co-investigator): This study explores the impact of the COVID-19 pandemic on people with dementia and carers who are taking part in the IDEAL progarmme.    
I am involved in a number of networks: ·        

  • NIHR Dementias Portfolio Development Group ·        

    Older People’s theme of the NIHR Applied Research Collaboration, Yorkshire & Humber

  • Older People’s theme of the NIHR Applied Research Collaboration, Yorkshire & Humber ·         INTERDEM: a pan-European group for leaders in dementia care          
  • Editor for Cochrane Dementia and Cognitive Improvement group

  • Peer-reviewer for the World Health Organisation Global Dementia Observatory

Within the University I am:       

  • Member of Faculty of Health Athena Swan Committee
  • Wolfson Centre for Applied Health Research Champion
I am a Fellow of Advance HE (awarded 2021)

Teaching

Teaching interests

Current Module leadership

DEM7002-C: Pharmacological and psychosocial support (MSc Advanced Dementia Studies)

DEM7015-C: Post-diagnostic support pathways for people with dementia (PGCert Practitioners with a Special Interest) 

Previous module leadership

DEM7014-C (maternity cover): Evidence Appraisal and Synthesis (MSc Advanced Dementia Studies)

DEM7009-C People with dementia and their families: Communication and inclusion (MSc Advanced Dementia Studies)

MSc Dissertation students

I supervise a number of dissertation students on the MSc Advanced Dementia Studies. Recent projects include:

  • The use of robotic animals within care homes. 

PhD students

  • 2019: Principal supervisor for Alison Ellwood. PhD on "The influence of psychological and social factors on the lived experience of people living with co-existent physical frailty and cognitive impairment.
  • 2019: 2nd supervisor for Oladayo Bifarin. PhD entitled 'Supporting carers  in the Chinese workforce' 
  • 2018-2020: Principal supervisor for Suzanne Hill. PhD entitled 'Investigating the quality and continuity of medication management when people living with dementia move be tween the care home and hospital setting' 
  • 2012- 2015: 2nd supervisor for Carol Opdebeeck. PhD entitled ‘Cognitive Reserve, mood and cognitive function in later life’  

Professional activities

  • British Society of Gerontology, Member
  • British Psychological Society, Member
  • INTERDEM (Early detection and timely INTERvention in DEMentia) , Member

Publications

Peer Reviewed Journal
TitleFactors associated with self and informant ratings of quality of life, well being and life satisfaction in people with mild to moderate dementia results from the Improving the experience of Dementia and Enhancing Active Life programme (2020)
AuthorsYu-Tzu Wu, Sharon M Nelis, Catherine Quinn, Anthony Martyr, Ian R Jones, Christina R Victor, Martin Knapp, Catherine Henderson, John V Hindle, Roy W Jones, Michael D Kopelman, Robin G Morris, James A Pickett, Jennifer M Rusted, Jeanette M Thom, Rachael Litherland, Fiona E Matthews, Linda Clare, the IDEAL Programme team, ,
JournalAge and Ageing
DOI10.1093/ageing/afz177
 
TitleInvolvement in meetings and events Tips for good practice (2020)
AuthorsMason, C., Quinn, C., Andrews, M., Parveen, S., & Litherland, R.
JournalJournal of Dementia Care
 
TitleLiving Alone with Mild-To-Moderate Dementia: Findings from the IDEAL Cohort. (2020)
AuthorsClare L;Martyr A;Henderson C;Gamble L;Matthews FE;Quinn C;Nelis SM;Rusted J;Thom J;Knapp M;Hart N;Victor C;
JournalJournal of Alzheimer's Disease
DOI10.3233/JAD-200638
 
TitleThe prevalence and predictors of loneliness in caregivers of people with dementia findings from the IDEAL programme (2020)
AuthorsVictor CR Rippon I Quinn C Nelis SM Martyr A Hart N Lamont R Clare L
JournalAging and Mental Health
DOI10.1080/13607863.2020.1753014
 
TitleA comprehensive model of factors associated with subjective perceptions of "living well" with dementia: findings from the IDEAL study (2019)
AuthorsClare, L.; Wu, Y-T.; Jones, I.R.; Victor, C.R.; Nelis, S.M.; Martyr, A.; Quinn, Catherine; Litherland, R.; Pickett, J.A.; Hindle, J.V.; Jones, R.W.; Knapp, M.; Kopelman, M.D.; Morris, R.G.; Rusted, J.M.; Thom, J.M.; Lamont, R.A.; Henderson, C.; Rippon, I.; Hillman, A.; Matthews, F.E.
JournalAlzheimer Disease and Associated Disorders
DOIdoi:10.1097/WAD.0000000000000286
 
TitleCaregivers' beliefs about dementia: findings from the IDEAL study (2019)
AuthorsQuinn, Catherine; Jones, I.R.; Martyr, A.; Nelis, S.M.; Morris, R.G.; Clare, L.; IDEAL Study Team
JournalPsychology and Health
DOIhttps://doi.org/10.1080/08870446.2019.1597098
 
TitleA Comprehensive Model of Factors Associated with Capability to "live Well" for Family Caregivers of People Living with Mild-to-Moderate Dementia: Findings from the IDEAL Study (2019)
AuthorsClare, L.; Wu, Y.-T.; Quinn, Catherine; Jones, I.R.; Victor, C.R.; Nelis, S.M.; Martyr, A.; Litherland, R.; Pickett, J.A.; Hindle, J.V.; Jones, R.W.; Knapp, M.; Kopelman, M.D.; Morris, R.G.; Rusted, J.M.; Thom, J.M.; Lamont, R.A.; Henderson, C.; Rippon, I.; Hillman, A.; Matthews, F.E.
JournalAlzheimer Disease and Associated Disorders
DOIdoi:10.1097/WAD.0000000000000285
 
TitleThe impact of relationship quality on life satisfaction and well-being in dementia caregiving dyads: findings from the IDEAL study. (2019)
AuthorsRippon I;Quinn C;Martyr A;Morris R;Nelis SM;Jones IR;Victor CR;Clare L;
JournalAging and Mental Health
DOI10.1080/13607863.2019.1617238
 
TitleSelf-esteem, self-efficacy and optimism as psychological resources among family caregivers of people with dementia: findings from the IDEAL study (2019)
AuthorsLamont, R.A., Quinn, C., Nelis, S.M., Martyr, A., Rusted, J.M., Hindle, J.V., Longdon, B., Clare, L., & on behalf of the IDEAL study team.
JournalInternational Psychogeriatrics
DOI10.1017/S1041610219001236
 
TitleAll the world's a stage: Accounting for the dementia experience - insights from the IDEAL study (2019)
AuthorsHillman A.;Jones I.;Quinn C.;Nelis S.;Lamont R.;Clare L.
JournalQualitative Research
DOI10.1177/1468794119893607
 
TitleCaregiver influences on 'living well' for people with dementia: Findings from the IDEAL study. (2019)
AuthorsQuinn C;Nelis SM;Martyr A;Morris RG;Victor C;Clare L;
JournalAging and Mental Health
DOI10.1080/13607863.2019.1602590
 
TitleThe relationship between perceived functional difficulties and the ability to live well with mild-to-moderate dementia: Findings from the IDEAL programme. (2019)
AuthorsMartyr A;Nelis SM;Quinn C;Rusted JM;Morris RG;Clare L; ;
JournalInternational Journal of Geriatric Psychiatry
DOI10.1002/gps.5128
 
TitlePsychological predictors of 'living well' with dementia: findings from the IDEAL study. (2019)
AuthorsLamont RA;Nelis SM;Quinn C;Martyr A;Rippon I;Kopelman MD;Hindle JV;Jones RW;Litherland R;Clare L;
JournalAging and Mental Health
DOI10.1080/13607863.2019.1566811
 
TitleInfluence of positive and negative dimensions of dementia caregiving on caregiver well-being and satisfaction with life: Findings from the IDEAL study (2019)
AuthorsCatherine Quinn, Sharon M Nelis, Anthony Martyr, Christina Victor, Robin G. Morris, and Linda Clare on behalf of the IDEAL study team
JournalThe American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry
DOIhttps://doi.org/10.1016/j.jagp.2019.02.005
 
TitleUse and costs of services and unpaid care for people with mild-to-moderate dementia: Baseline results from the IDEAL cohort study (2019)
AuthorsHenderson C.;Knapp M.;Nelis S.;Quinn C.;Martyr A.;Wu Y.;Jones I.;Victor C.;Pickett J.;Hindle J.;Jones R.;Kopelman M.;Matthews F.;Morris R.;Rusted J.;Thom J.;Clare L.
JournalAlzheimer'S And Dementia: Translational Research And Clinical Interventions
DOI10.1016/j.trci.2019.09.012
 
TitleThe impact of comorbidity on the quality of life of people with dementia: findings from the IDEAL study (2019)
AuthorsNelis, S.M.; Wu, Y.-T.; Matthews, F.E.; Martyr, A.; Quinn, Catherine; Rippon, I.; Rusted, J.; Thom, J.M.; Kopelman, M.D.; Hindle, J.V.; Jones, R.W.; Clare, L.
JournalAge and Ageing
DOIhttps://doi.org/10.1093/ageing/afy155
 
TitleReflections on PPI from the 'Action on Living Well: Asking You' advisory network of people with dementia and carers as part of the IDEAL study. (2018)
AuthorsLitherland R;Burton J;Cheeseman M;Campbell D;Hawkins M;Hawkins T;Oliver K;Scott D;Ward J;Nelis SM;Quinn C;Victor C;Clare L;
JournalDementia
DOI10.1177/1471301218789309
 
TitleInequalities in living well with dementia-The impact of deprivation on well-being, quality of life and life satisfaction: Results from the improving the experience of dementia and enhancing active life study (2018)
AuthorsWu, Y.-T.; Clare, L.; Jones, I.R.; Martyr, A.; Nelis, S.M.; Quinn, Catherine; Victor, C.R.; Lamont, R.A.; Rippon, I.; Matthews, F.E.; Improving the experience of Dementia and Enhancing Active Life (IDEAL) study
JournalInternational Journal of Geriatric Psychiatry
DOI10.1002/gps.4998
 
TitleA Comprehensive Model of Factors Associated with Capability to "live Well" for Family Caregivers of People Living with Mild-to-Moderate Dementia: Findings from the IDEAL Study (2018)
AuthorsClare L.;Wu Y.;Quinn C.;Jones I.;Victor C.;Nelis S.;Martyr A.;Litherland R.;Pickett J.;Hindle J.;Jones R.;Knapp M.;Kopelman M.;Morris R.;Rusted J.;Thom J.;Lamont R.;Henderson C.;Rippon I.;Hillman A.;Matthews F.
JournalAlzheimer Disease and Associated Disorders
DOI10.1097/WAD.0000000000000285
 
TitleProtocol for the IDEAL-2 longitudinal study: following the experiences of people with dementia and their primary carers to understand what contributes to living well with dementia and enhances active life. (2018)
AuthorsSilarova B;Nelis SM;Ashworth RM;Ballard C;Bieńkiewicz M;Henderson C;Hillman A;Hindle JV;Hughes JC;Lamont RA;Litherland R;Jones IR;Jones RW;Knapp M;Kotting P;Martyr A;Matthews FE;Morris RG;Quinn C;Regan J;Rusted JM;van den Heuvel EA;Victor CR;Wu YT;Clare L;
JournalBMC Public Health
DOI10.1186/s12889-018-6129-7
 
TitleInfluence of Positive Aspects of Dementia Caregiving on (2018)
AuthorsQuinn, C., & Toms, G.
JournalThe Gerontologist
DOI10.1093/geront/gny168
 
TitleReflections on PPI from the ‘Action on Living Well: Asking You’ advisory network of people with dementia and carers as part of the IDEAL study (2018)
AuthorsLitherland, R.; Burton, J.; Cheeseman, M.; Campbell, D.; Hawkins, M.; Hawkins, T.; Oliver, K.; Scott, D.; Ward, J.; Nelis, S.M.; Quinn, Catherine; Victor, C.; Clare, L.
JournalDementia
 
TitleProtocol for the IDEAL-2 longitudinal study: following the experiences of people with dementia and their primary carers to understand what contributes to living well with dementia and enhances active life (2018)
AuthorsSilarova, B.; Nelis, S.M.; Ashworth, R.M.; Ballard, C.; Bienkiewicz, M.; Henderson, C.; Hillman, A.; Hindle, J.V.; Hughes, J.C.; Lamont, R.A.; Litherland, R.; Jones, I.R.; Jones, R.W.; Knapp, M.; Kotting, P.; Martyr, A.; Matthews, F.E.; Morris, R.G.; Quinn, Catherine; Regan, J.; Rusted, J.M.; van den Heuval, E.A.; Victor, C.R.; Wu, Y.-T.; Clare, L.
JournalBMC Public Health
DOIdoi:10.1186/s12889-018-6129-7
 
TitleDualities of dementia illness narratives and their role in a narrative economy (2018)
AuthorsHillman, A.; Jones, I.R.; Quinn, Catherine; Nelis, S.M.; Clare, L.
JournalSociology of Health and Illness
 
TitleBeliefs About Dementia: Development and Validation of the Representations and Adjustment to Dementia Index (RADIX) (2018)
AuthorsQuinn, Catherine; Morris, R.G.; Clare, L.
JournalThe American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry
DOI10.1016/j.jagp.2018.02.004
 
TitleLiving well with dementia: a systematic review and correlational meta-analysis of factors associated with quality of life, well-being and life satisfaction in people with dementia (2018)
AuthorsMartyr, A.; Nelis, S.M.; Quinn, Catherine; Wu, Y.-T.; Lamont, R.A.; Henderson, C.; Clarke, R.; Hindle, J.V.; Thom, J.M.; Jones, I.R.; Morris, R.G.; Rusted, J.M.; Victor, C.R.; Clare, L.
JournalPsychological Medicine
DOI10.1017/S0033291718000405
 
TitleSocial Support and Attitudes to Aging in Later Life. (2017)
AuthorsLamont RA;Nelis SM;Quinn C;Clare L;
JournalInternational Journal of Aging and Human Development
DOI10.1177/0091415016668351
 
TitleIllness representations in caregivers of people with dementia (2017)
AuthorsQuinn, Catherine; Jones, I.R.; Clare, L.
JournalAging and Mental Health
 
TitleA pilot randomized controlled trial of a self-management group intervention for people with early-stage dementia (The SMART study). (2016)
AuthorsQuinn C;Toms G;Jones C;Brand A;Edwards RT;Sanders F;Clare L;
JournalInternational Psychogeriatrics
DOI10.1017/S1041610215002094
 
TitleCurrent Practice in the Referral of Individuals with Suspected Dementia for Neuroimaging by General Practitioners in Ireland and Wales. (2016)
AuthorsCiblis AS;Butler ML;Quinn C;Clare L;Bokde AL;Mullins PG;McNulty JP;
JournalPLoS ONE
DOI10.1371/journal.pone.0151793
 
Title"I Don't Think of It As An Illness": Illness Representations in Mild to Moderate Dementia (2016)
AuthorsClare, L.; Quinn, Catherine; Jones, I.R.; Woods, R.T.
JournalJournal of Alzheimer's disease : JAD
 
TitleA Review of Self-Management Interventions for People With Dementia and Mild Cognitive Impairment. (2016)
AuthorsQuinn C;Toms G;Anderson D;Clare L;
JournalJournal Of Applied Gerontology : The Official Journal Of The Southern Gerontological Society
DOI10.1177/0733464814566852
 
TitleExecutive control in older Welsh monolinguals and bilinguals (2016)
AuthorsClare L.;Whitaker C.;Martyr A.;Martin-Forbes P.;Bastable A.;Pye K.;Quinn C.;Thomas E.;Mueller Gathercole V.;Hindle J.
JournalJournal of Cognitive Psychology
DOI10.1080/20445911.2016.1148041
 
TitleA self-management group for people with dementia (2016)
AuthorsQuinn, C.;Toms, G.;Davies, S.;Davies, M.;Clare, L.;
JournalJournal of Dementia Care
 
TitleIs cognitive lifestyle associated with depressive thoughts and self-reported depressive symptoms in later life? (2016)
AuthorsOpdebeeck C;Quinn C;Nelis SM;Clare L;
JournalEuropean Journal of Ageing
DOI10.1007/s10433-015-0359-7
 
TitleBilingualism, executive control, and age at diagnosis among people with early-stage Alzheimer's disease in Wales. (2016)
AuthorsClare L;Whitaker CJ;Craik FI;Bialystok E;Martyr A;Martin-Forbes PA;Bastable AJ;Pye KL;Quinn C;Thomas EM;Gathercole VC;Hindle JV;
JournalJournal of Neuropsychology
DOI10.1111/jnp.12061
 
TitleHow does cognitive reserve impact on the relationships between mood, rumination, and cognitive function in later life? (2015)
AuthorsOpdebeeck C;Nelis SM;Quinn C;Clare L;
JournalAging and Mental Health
DOI10.1080/13607863.2014.962005
 
TitleBalancing needs: The role of motivations, meanings and relationship dynamics in the experience of informal caregivers of people with dementia (2015)
AuthorsQuinn C.;Clare L.;Woods R.
JournalDementia
DOI10.1177/1471301213495863
 
TitleDoes cognitive reserve moderate the association between mood and cognition? A systematic review (2015)
AuthorsOpdebeeck, C.;Quinn, C.;Nelis, S.M.;Clare, L.;
JournalReviews in Clinical Gerontology
DOI10.1017/S0959259815000155
 
TitleA systematic narrative review of support groups for people with dementia. (2015)
AuthorsToms GR;Clare L;Nixon J;Quinn C;
JournalInternational Psychogeriatrics
DOI10.1017/S1041610215000691
 
TitleHelp yourself: perspectives on self-management from people with dementia and their caregivers. (2015)
AuthorsToms GR;Quinn C;Anderson DE;Clare L;
JournalQualitative Health Research
DOI10.1177/1049732314549604
 
TitleA pilot randomized controlled trial of a self-management group intervention for people with early-stage dementia (The SMART study). (2015)
AuthorsQuinn C;Toms G;Jones C;Brand A;Edwards RT;Sanders F;Clare L;
JournalInternational Psychogeriatrics
DOI10.1017/S1041610215002094
 
Title'It's in the eyes': How family members and care staff understand awareness in people with severe dementia (2014)
AuthorsQuinn C.;Clare L.;Jelley H.;Bruce E.;Woods B.
JournalAging and Mental Health
DOI10.1080/13607863.2013.827627
 
TitleSelf-management in early-stage dementia: a pilot randomised controlled trial of the efficacy and cost-effectiveness of a self-management group intervention (the SMART study). (2014)
AuthorsQuinn C;Anderson D;Toms G;Whitaker R;Edwards RT;Jones C;Clare L;
JournalTrials
DOI10.1186/1745-6215-15-74
 
TitleImproving the experience of dementia and enhancing active life--living well with dementia: study protocol for the IDEAL study. (2014)
AuthorsClare L;Nelis SM;Quinn C;Martyr A;Henderson C;Hindle JV;Jones IR;Jones RW;Knapp M;Kopelman MD;Morris RG;Pickett JA;Rusted JM;Savitch NM;Thom JM;Victor CR;
JournalHealth and Quality of Life Outcomes
DOI10.1186/s12955-014-0164-6
 
TitleCare staff and family member perspectives on quality of life in people with very severe dementia in long-term care: a cross-sectional study. (2014)
AuthorsClare L;Quinn C;Hoare Z;Whitaker R;Woods RT;
JournalHealth and Quality of Life Outcomes
DOI10.1186/s12955-014-0175-3
 
TitleAwareCare: A pilot randomized controlled trial of an awareness-based staff training intervention to improve quality of life for residents with severe dementia in long-term care settings (2013)
AuthorsClare L.;Whitaker R.;Woods R.;Quinn C.;Jelley H.;Hoare Z.;Woods J.;Downs M.;Wilson B.
JournalInternational Psychogeriatrics
DOI10.1017/S1041610212001226
 
TitleNegotiating the balance: the triadic relationship between spousal caregivers, people with dementia and Admiral Nurses. (2013)
AuthorsQuinn C;Clare L;McGuinness T;Woods RT;
JournalDementia
DOI10.1177/1471301212437780
 
TitleAwareCare: development and validation of an observational measure of awareness in people with severe dementia (2012)
AuthorsClare, L.; Whitaker, R.; Quinn, Catherine; Jelley, H.; Hoare, Z.; Woods, B.; Downs, Murna G.; Wilson, B.A.
JournalNeuropsychological Rehabilitation
 
TitleWhat predicts whether caregivers of people with dementia find meaning in their role? (2012)
AuthorsQuinn C;Clare L;Woods RT;
JournalInternational Journal of Geriatric Psychiatry
DOI10.1002/gps.3773
 
TitleThe impact of relationships, motivations, and meanings on dementia caregiving outcomes. (2012)
AuthorsQuinn C;Clare L;McGuinness T;Woods RT;
JournalInternational Psychogeriatrics
DOI10.1017/S1041610212000889
 
TitleThe impact of motivations and meanings on the wellbeing of caregivers of people with dementia: a systematic review. (2010)
AuthorsQuinn C;Clare L;Woods RT;
JournalInternational Psychogeriatrics
DOI10.1017/S1041610209990810
 
TitleThe impact of the quality of relationship on the experiences and wellbeing of caregivers of people with dementia: a systematic review. (2009)
AuthorsQuinn C;Clare L;Woods B;
JournalAging and Mental Health
DOI10.1080/13607860802459799
 
TitleThe experience of providing care in the early stages of dementia: an interpretative phenomenological analysis. (2008)
AuthorsQuinn C;Clare L;Pearce A;van Dijkhuizen M;
JournalAging and Mental Health
DOI10.1080/13607860802380623
 
Book Chapters
TitleTimely Psychosocial Interventions in Dementia Care: Evidence-Based Practice (2020)
AuthorsQuinn, C. & Clare, L.
JournalAwarecare: an awareness-based staff training intervention to improve quality of life for care home residents with severe dementia
PublisherJessica Kingsley
 
TitlePositive experiences in dementia caregiving (2016)
AuthorsQuinn, C.
JournalPositive Psychology Approaches to Dementia
PublisherJessica Kingsley
 
TitleInterpretative phenomenological analysis (2008)
AuthorsQuinn, C. & Clare, L.
JournalNursing Research: Designs and Methods
PublisherElsevier
 
Published Reports
TitleInformation and support interventions for informal caregivers of people with dementia (2007)
DOI10.1002/14651858.CD006440
 
Other Publications
Other typeOnline Database
TitleConducting interviews with people with dementia and their caregivers (2017)
JournalSage Research methods Cases
DOI10.4135/9781526404855
 
Other typeReviews
TitleInformation and support interventions for informal caregivers of people with dementia (2007)
AuthorsNelis S.;Quinn C.;Clare L.
JournalCochrane Database of Systematic Reviews
DOI10.1002/14651858.CD006440