Palliative Care for Children/Young People with a Life Limiting Illness

Module code: NUR6006-C

Module Aims       

To develop knowledge and understanding of palliative care in relation to children and young people (CYP) from a multi-professional perspective.
To develop the skill of effectively managing symptom control for CYP who have a life limiting illness alongside their families.

Outline Syllabus   

Defining the concept of palliative care and life-limiting illness.
Child/family understanding of death, dying and bereavement - impact on individual within family.
Child/family perspectives of palliative care service provision - support, roles, care and partnership working.
Cultural/spiritual perspectives.
Transition to adulthood - child versus adult needs/decision making - competence.
Professional roles, responsibility and accountability in assessing, planning, implementing and evaluating effective multiprofessional, service provision.
Holistic/developmental approach to caring for the child/young person.
Altered physiology, pathophysiology, symptom control and management - policy and guidance, non-pharmacological/pharmacological interventions.
Pain assessment tools, physiology of pain, factors affecting pain.
Effective documentation and record keeping.
Giving/receiving bad news - diagnosis and end of life decisions - ethical and professional issues.
Practical/procedural implications of death.
Home, hospital and hospice care.
Care and support of informal/formal carers - burn out.
Current and relevant policy, legislation and guidance specific to palliative care in children/young people.

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