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Dr Catherine Quinn

PositionLecturer on MSc Advanced Dementia Studies
Location4.04
DepartmentCentre for Applied Dementia Studies
Telephone6593
Emailc.quinn1@bradford.ac.uk
Twitter@cquinn196
ORCID0000-0001-9553-853X

Research Interests (key words only)

Improving the quality of care for people with dementia and carers; Living well with dementia; Illness perceptions; Positive aspects of caregiving; Relationship dynamics.

Teaching and Supervisory Responsibilities

Lecturer on MSc Advanced Dementia Studies.

Biography

Catherine’s interest in dementia and informal caregiving was initially founded her Master’s dissertation in which she analysed interviews with informal carers of with people with dementia. Her PhD in Psychology researched the role of motivations, meanings, and relationship quality in the experience of informal carers of people with dementia. This was a mixed-methods study, which involved informal carers, people with dementia, and Admiral Nurses.

Her interest in caregiving motivations and relationships led to her being a trial manager on a randomized controlled study which concerned improving care for people with advanced dementia residing in care homes (the AwareCare study: awareness in severe dementia). In this study she was involved in the development of the AwareCare observational tool (the AwareCare). After working on the AwareCare study, Catherine was awarded a grant to conduct a pilot trial of self-management in early-stage dementia (SMART). In this study she worked in collaboration with staff at Glan Traeth Memory clinic to develop a self-management intervention that could be offered within the memory clinic setting. During this period, she was also employed on the NeuroSKILL project and was involved in the development of training on neuroimaging in dementia. As part of this work she conducted research on the illness representations held by people with dementia and carers.

Her expertise in caregiving led to her being involved as a Co-Investigator and Senior Research Fellow on the IDEAL study (living well with dementia). This is five-year cohort study involves approximately 1547 people with dementia and 1283 informal carers at Time 1, who are followed up for two further time-points. She is a member of the Operational Management Group and actively contributes to the qualitative, study delivery, and impact work-streams. Catherine works with the project involvement group, a group of people with dementia and carers who advise on different aspects of the project (the ALWAYs group; Action on Living Well: Asking You). Catherine is also a Co-Investigator on the recently funded IDEAL-2 programme. The IDEAL-2 programme continues to follow the IDEAL cohort for a further three time-points and has five other work-packages. Catherine is co-leading the work package on developing techniques for including the perspective of people with advanced dementia.

Current Projects

Catherine is a Co-Investigator on the IDEAL programme (http://www.idealproject.org.uk):
Clare, L. (PI), Jones, R. W., Morris, R., Mathews, F., Rusted, J., Hughes, J., Victor, C., Knapp, M., Jones, I.R., Savitch, N., Hindle, J.V., Quinn, C., Martyr, A., Nelis, S., Ballard, C., Hillman, A. (2018-2022). Improving the experience of dementia and enhancing active life: a longitudinal perspective on living well with dementia (the IDEAL-2 study). Alzheimer’s Society. £1,999,704.60 over 5 years.

Clare, L., Jones, I.R., Victor, C., Hindle, J.V., Jones, R.W., Knapp, M., Kopelman, M., Litherland, R., Martyr, A., Matthews, F., Morris, R.G., Nelis, S.M., Pickett, J., Quinn, C., Rusted, J., Thom. J. (2014 – 2018). Living well with dementia. ESRC/NIHR. £4,230,929 over 5 years

Catherine was Principal Investigator on the SMART study:
Quinn, C. (PI), Clare, L., Anderson, D., Whitaker, R., & Tudor Edwards, R. (2013-2014). Self-management in dementia: a pilot trial of the development, efficacy and cost-effectiveness of a self-management group intervention 2013- 2014. RFS-12-35. NISCHR. £233,979 over 2 years.

Networks/Roles

Member of:

  • British Society of Gerontology 
  • British Psychological Society
  • INTERDEM (Early detection and timely INTERvention in DEMentia)

Publications

Quinn, C., Morris, R. & Clare, L. (2018). Beliefs about dementia: Development and validation of the Representations and Adjustment to Dementia Index (RADIX). American Journal of Geriatric Psychiatry, 26(6), 680-689. doi: 10.1016/j.jagp.2018.02.004

Hillman, A., Jones, I. R., Quinn, C., Nelis, S. M., & Clare, L. (2018). Dualities of dementia accounts: biographical reinforcement and narrative economies. Sociology of Health and Illness, 40(5), 874-891. doi:10.1111/1467-9566.12729

Litherland, R., Burton, J., Cheeseman, M., Campbell, D., Hawkins, M., Hawkins, T., Oliver, K., Scott, D., Ward, J, Nelis, S. M., Quinn, C., Victor, C., & Clare, L. (2018). Reflections on PPI from the 'Action on Living Well: Asking You' advisory network of people with dementia and carers as part of the IDEAL study. Dementia (London), 17(8), 1035-1044. doi:10.1177/1471301218789309

Martyr, A., Nelis, S.M., Quinn, C., Wu, Y-T., Lamont, R.A., Henderson, C., Clarke, R., Hindle, J.V., Thom, J.M., Jones, I. R., Morris, R.G., Rusted, J.M., Victor, C.R., & Clare, L. (2018). Living well with dementia: a systematic review and correlational meta-analysis of factors associated with quality of life, well-being, and life satisfaction in people with dementia. Psychological Medicine. doi: 10.1017/S0033291718000405

Nelis, S. M., Wu, Y. T., Matthews, F. E., Martyr, A., Quinn, C., Rippon, I., . . . Clare, L. (2018). The impact of comorbidity on the quality of life of people with dementia: findings from the IDEAL study. Age Ageing. doi:10.1093/ageing/afy155

Silarova, B., Nelis, S. M., Ashworth, R. M., Ballard, C., Bienkiewicz, M., Henderson, C., Hillman, A., Hindle, J. V., Hughes, J. C., Lamont, R. A., Litherland, R., Jones, I. R., Jones, R. W., Knapp, M., Kotting, P., Martyr, A., Matthews, F. E., Morris, R. G., Quinn, C., Regan, J., Rusted, J. M., van den Heuvel, E. A., Victor, C. R., Wu, Y. T., Clare, L.. (2018). Protocol for the IDEAL-2 longitudinal study: following the experiences of people with dementia and their primary carers to understand what contributes to living well with dementia and enhances active life. BMC Public Health, 18(1), 1214. doi:10.1186/s12889-018-6129-7

Quinn, C. (2017). Conducting interviews with people with dementia and their caregivers. Sage Research methods Cases. doi: 10.4135/9781526404855

Lamont, R. A., Nelis, S. M., Quinn, C., & Clare, L. (2017). Social support and attitudes to aging in later life. International Journal of Aging & Human development, 84(2), 109-125. doi:10.1177/0091415016668351

Quinn, C., Jones, I. R., & Clare, L. (2017). Illness representations in caregivers of people with dementia. Aging & Mental Health, 21(5), 553-561. doi: 10.1080/13607863.2015.1128882

Quinn, C., Toms, G., Anderson, D., & Clare, L. (2016). A review of self-management interventions for people with dementia and mild cognitive impairment. Journal of Applied Gerontology, 35(11), 1154-1188. doi:10.1177/0733464814566852

Quinn, C., Toms, G., Davies, S., Davies, M., & Clare, L. (2016). A self-management group for people with dementia. Journal of Dementia Care, 24(5), 29-32.

Quinn, C., Toms, G., Jones, C., Brand, A., Tudor-Edwards, R., Sanders, F., & Clare, L. (2016). A pilot randomized controlled trial of a self-management group intervention for people with early-stage dementia (The SMART study). International Psychogeriatrics, 28(5), 787-800. doi: 10.1017/S1041610215002094

Ciblis, A. S., Butler, M.-L., Quinn, C., Clare, L., Bokde, A. L. W., Mullins, P. G., & McNulty, J. P. (2016). Current practice in the referral of individuals with suspected dementia for neuroimaging by general practitioners in Ireland and Wales. PLoS ONE, 11(3). doi: 10.1371/journal.pone.0151793

Clare, L., Quinn, C., Jones, I. R., & Woods, R. T. (2016). I don’t think of it as an illness’: illness representations in mild to moderate dementia. Journal of Alzheimer's Disease, 51(1). doi: 10.3233/JAD-150794

Clare, L., Whitaker, C.J., Craik, F.I., Bialystok, E., Martyr, A., Martin-Forbes, P.A., Bastable, A.J., Pye, K.L., Quinn, C., Thomas, E.M., Gathercole, V.C.M., & Hindle, J.V. (2016). Bilingualism, executive control, and age at diagnosis among people with early-stage Alzheimer's disease in Wales. Journal of Neuropsychology, 10, 163-185. doi: 10.1111/jnp.12061

Clare, L., Whitaker, C.J., Martyr, A., Martin-Forbes, P.A., Bastable, A.J., Pye, K.L., Quinn, C., Thomas, E.M., Gathercole, V.C.M., & Hindle, J.V. (2016). Executive control in older Welsh monolinguals and bilinguals. Journal of Cognitive Psychology, 28(4), 412-426. doi:10.1080/20445911.2016.1148041)

Quinn, C., Clare, L., & Woods, R. T. (2015). Balancing needs: The role of motivations, meanings and relationship dynamics in the experience of informal caregivers of people with dementia. Dementia, 14(2), 220-237. doi: 10.1177/1471301213495863

Opdebeeck, C., Nelis, S. M., Quinn, C., & Clare, L. (2015). How does cognitive reserve impact on the relationships between mood, rumination, and cognitive function in later life? Aging & Mental Health, 19(8), 705-712. doi: 10.1080/13607863.2014.962005

Opdebeeck, C., Quinn, C., Nelis, S., & Clare, L. (2015). Is cognitive lifestyle associated with depressive thoughts and self-reported depressive symptoms in later life? European Journal of Ageing, 1-11. doi: 10.1007/s10433-015-0359-7

Opdebeeck, C., Quinn, C., Nelis, S. M., & Clare, L. (2015). Does cognitive reserve moderate the association between mood and cognition? A systematic review. Reviews in Clinical Gerontology, 25(03), 181-193. doi: 10.1017/s0959259815000155

Toms, G. R., Clare, L., Nixon, J., & Quinn, C. (2015). A systematic narrative review of support groups for people with dementia. International Psychogeriatrics, 27(9), 1439-1465. doi:10.1017/S1041610215000691

Toms, G. R., Quinn, C., Anderson, D. E. and Clare, L. (2015). Help yourself: Perspectives on self-management from people with dementia and their caregivers. Qualitative Health Research 25, 1, 87-98.

Quinn, C., Anderson, D., Toms, G., Whitaker, R., Tudor Edwards, R., Jones, C., & Clare, L. (2014). Self-management in early-stage dementia: a pilot randomised controlled trial of the efficacy and cost-effectiveness of a self-management group intervention (the SMART study). Trials, 15(1), 74. doi: 10.1186/1745-6215-15-74

Quinn, C., Clare, L., Jelley, H., Bruce, E., & Woods, B. (2014) ‘It’s in the eyes’: how family members and care staff understand awareness in people with severe dementia. Aging & Mental Health, 18(2), 260–268. doi: 10.1080/13607863.2013.827627

Clare, L., Nelis, S.M., Quinn, C., Martyr, A., Henderson, C., Jones, I.R., Jones, R.W., Knapp, M., Kopelman, M.D., Morris, R.G., Pickett, J.A., Rusted, J.M., Savitch, N.M., Thom, J.M., & Victor, C.R. (2014). Improving the experience of dementia and enhancing active life - living well with dementia: study protocol for the IDEAL study. Health and Quality of Life Outcomes. 12, 164. doi: 10.1186/s12955-014-0164-6

Clare, L., Quinn, C., Hoare, Z., Whitaker, R., & Woods, R. (2014). Care staff and family member perspectives on quality of life in people with very severe dementia in long-term care: a cross-sectional study. Health and Quality of Life Outcomes, 12(1), 175. doi: 10.1186/s12955-014-0175-3

Clare, L., Whitaker, R., Woods, R. T., Quinn, C., Jelley, H., Hoare, Z., Woods, J., Downs, M., & Wilson, B. A. (2013). AwareCare: a pilot randomized controlled trial of an awareness-based staff training intervention to improve quality of life for residents with severe dementia in long-term care settings. International Psychogeriatrics, 25(1), 128-139. doi:10.1017/S1041610212001226

Quinn, C., Clare, L., McGuinness, T., & Woods, R. T. (2012). Negotiating the balance: The triadic relationship between spousal caregivers, people with dementia and Admiral Nurses. Dementia. Advance online publication. doi: 10.1177/1471301212437780

Quinn, C., Clare, L., McGuiness, T. & Woods, R. T. (2012). The impact of relationships, motivations, and meanings on dementia caregiving outcomes. International Psychogeriatrics, 24(11), 1816-1826. doi:1017/S1041610212000889

Quinn, C., Clare, L., & Woods, R. T. (2012). What predicts whether caregivers of people with dementia find meaning in their role? International Journal of Geriatric Psychiatry, 27(11), 1195-1202. doi: 10.1002/gps.3773

Clare, L., Whitaker, R., Quinn, C., Jelley, H., Hoare, Z., Woods, B., Downs, M., & Wilson, B. (2012). AwareCare: development and validation of an observational measure of awareness in people with severe dementia. Neuropsychological Rehabilitation, 22(1), 113-133. doi:10.1080/09602011.2011.640467

Quinn, C., Clare, L., & Woods, R.T. (2010). The impact of motivations and meanings on the wellbeing of caregivers of people with dementia: a systematic review. International Psychogeriatrics, 22(1), 43-55. doi:10.1017/S1041610209990810

Quinn, C., Clare, L., & Woods, R.T. (2009). The impact of the quality of relationship on the experiences and wellbeing of caregivers of people with dementia: a systematic review. Aging and Mental Health, 13(2), 143-154. doi:10.1080/13607860802459799

Quinn, C., Clare, L., Pearce, A., & van Dijkhuizen M. (2008). The experience of providing care in the early stages of dementia: an interpretative phenomenological analysis. Aging & Mental Health, 12(6), 769-778. doi:10.1080/13607860802380623

Nelis, S., Quinn, C., & Clare, L. (2007) Information and support interventions for informal caregivers of people with dementia. The Cochrane Library. doi:10.1002/14651858.CD006440 "

Public/Academic/Stakeholder Engagement

Recent engagement:

Quinn, C. (2018, October). Living well with dementia. Presentation at ‘Dementia and You: Protecting your health and wealth’ event organised by BRACE and University of Exeter. Exeter, UK. 

Quinn, C. (2018, May). The IDEAL study. Presentation at a Dementia Awareness event organised by Leeds and York Partnership Trust. Leeds, UK. 

Quinn, C. (2018, May). The IDEAL study: Preliminary findings from Time 1. Presentation at Northumberland, Tyne and Wear Research and Development Conference. Newcastle, UK. 

Quinn, C., Morris, R. G., & Clare, L. (2017, October). Representations and adjustment in dementia. Poster presentation at Alzheimer Europe Conference, Berlin, Germany

Quinn, C. (Chair), Hillman, A., Oliver, K., & Clare, L. (2017, July). Dementia narratives: How people understand and adjust to a diagnosis of dementia. Symposium conducted at the British Society of Gerontology conference, Swansea, UK

Quinn, C. (Chair), Pearson, M., Bartels, L., & Stoner, C. (2017, July). Positive experiences of living with dementia and caring for someone with dementia. Symposium conducted at the British Society of Gerontology conference, Swansea, UK

In the News/Media

Quinn, C., Stoner, C., Hill, S., & O’Hare, M. (2018, May 30). Research outside NHS setting [Audio podcast]. Retrieved from https://www.dementiaresearcher.nihr.ac.uk/research-outside-the-nhs-setting/

Quinn, C. (2018). Day in the life of a researcher [blog]. Retrieved from https://www.dementiaresearcher.nihr.ac.uk/day-in-the-life-of-a-researcher/

Quinn, C. (2017, 23rd June). Interview by K. Patterson & C. Ramseur. A review of self-management interventions with people with dementia and mild cognitive impairment. Retrieved from http://sagenursing.sage-publications.libsynpro.com/jag-a-review-of-self-management-interventions-for-people-with-dementia-and-mild-cognitive-impairment

Quinn, C. (2017). Interviewing people with dementia: Practical tips [blog]. Retrieved from http://enrich.nihr.ac.uk/blogpost/interviewing-people-with-dementia-practical-tips

Quinn, C. (2016). What’s in a name? How family carers understand dementia [blog]. Retrieved from http://blogs.cardiff.ac.uk/wiserd/category/staff/dr-catherine-quinn/

Quinn, C. (2016). People with dementia gain from learning self-management skills [Press release]. Retrieved from http://www.exeter.ac.uk/news/archive/2016/january/title_491396_en.html

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