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Dr Andrea Capstick

PositionSenior Lecturer in Dementia Studies
Location4.04
DepartmentCentre for Applied Dementia Studies
Telephone+44 (0) 1274 235192
Emaila.j.capstick@bradford.ac.uk

Research Interests (key words only)

Human rights and social justice in the context of dementia; creative and arts-based and narrative approaches to dementia; participatory visual methods in dementia research; understanding the experience of seldom-heard groups

PhD Supervision

  • Laura Green: Suffering in end-of-life care (completed)
  • Courtney Shaw: Improving Emergency Department care for people with dementia
  • Helen Wells: Decision-making about where to live for women with dementia who live alone

Teaching and Supervisory Responsibilities

Module leadership

Postgraduate modules: 

  • Critical perspectives on Dementia
  • Arts and Activities in Dementia Care
  • Service Evaluation in Dementia Care

Students Supervised

MSc Dementia students supervised to completion (2013 - 2018)

  • Jan Robins
  • Carolyn Shaw
  • Corinne Verwey
  • Samita Kirve
  • Aileen Beatty
  • Jodie Clarke
  • Jill Hoyle
  • Karin Voigt (Davida Fortinsky Prizewinner)
  • Nicola Taylor
  • Jennie Mallinson
  • Samantha Munbodh
  • Catherine Phillips
  • Stephanie Janka-Spurlock

Biography

Andrea originally worked alongside the late Professor Tom Kitwood to develop the first distance learning programme in Dementia Studies. Since then she has at different times led both the BSc (Hons) and the MSc programmes in Dementia Studies at the University of Bradford.

She holds a Doctorate in Education (EdD) for her work on the use of film and narrative biography in teaching dementia studies, and has published on a variety of subjects including participatory visual methods, arts-based approaches to teaching and learning, and the representation of people with dementia in the popular media. She has undertaken research funded by the NIHR on the impact of participatory film-making on social inclusion and well-being for people with dementia in long-term care, and more recently on the study ‘What works in dementia education and training?’ where she led the Patient and Public Involvement (PPI) work.

Study History

Doctor of Education (EdD), Manchester Metropolitan University

BA (Hons) Interdisciplinary Human Studies, University of Bradford

Fellow of the Higher Education Academy

Professional Activities

  • Member of the Humanities, Social and Health Sciences Research Ethics Panel
  • Co-facilitator of Timecode: the University of Bradford’s seminar series on arts, media and visual culture
  • Dementia studies representative on the Faculty of Health Studies Service User Advisory Group
  • 2013-2014: Advisory group member on the Joseph Rowntree Foundation funded project ‘Women’s experiences of dementia’
  • 2012-2014: Advisor to the Baring Foundation-funded project ‘Where the Heart is’, a collaboration between Age UK, the Trebus Project, and five artists-in-residence

Current Projects

Key Projects

DateTitleFunderCollaborator £ 
2015-19 Management board member for the Doctoral Training Centre on 'Transitions in Dementia Care' Alzheimer's Society Professors Murna Downs and Jan Oyebod £450,000
2015 Making Bradton a dementia-friendly community Health Education England Dr John Chatwin, University of Salford £10,000
2014 What works in dementia care education and training? Department of Health Prof Claire Surr, Leeds Beckett University £450,000

Networks/Roles

Membership of networks

  • Dementia and Cultural Narrative network
  • Critical Dementia Studies Network
  • Participatory Video Network (PV-NET)
  • Experimental Research Network
  • Mental Health in Higher Education (MHHE)

External roles

  • Fellow of the NIHR School for Social Care Research
  • Fellow of the Higher Education Academy
  • Member of Interdem (the pan-European network of dementia researchers)

Publications

Peer Review Journals

Bellass S, Balmer A, May V, Keady J, Buse C, Capstick A, Burke L, Bartlett R L, and Hodgson J (2018) Broadening the debate on creativity and dementia: A critical approach. Dementia: the international journal of social research and practice

Chatwin J and Capstick A (2017) The influence of subliminal crosstalk in dementia narratives. Dementia: the international journal of social research and practice.

Capstick A and Chatwin J (2016) The carnival is not over: cultural resistance in dementia care environments. Pragmatics and Society, 7 (2): 169-195.

Capstick, A. and Ludwin, K. (2015) Place memory and dementia: findings from  participatory film-making in long-term care. Health and Place 34: 157-163.

Ludwin, K. and Capstick, A. (2015) Using participatory video to understand diversity among people with dementia in long-term care.  Journal of Psychological Issues in Organisational Culture, 5 (4): pp.30–38. http://onlinelibrary.wiley.com/doi/10.1002/jpoc.21161/full

Capstick, A., and Clegg, D. (2013)  Behind the stiff upper lip: war narratives of older men with dementia.  War and culture studies, 6 (3), pp.239-254

Capstick, A. (2012) Dancing to the music of time: an experiential learning exercise in dementia care. Journal of Applied Arts and Health, 3 (2)

Capstick, A. (2011) Travels with a Flipcam: bringing the community to people with dementia. Visual Studies (Special issue on mobile technologies), 26 (2), pp.142-147 http://www.tandfonline.com/doi/abs/10.1080/1472586X.2011.571890

Book chapters

Ludwin K and Capstick A (2017) Ethnography in Dementia Care Research: observations on ability and capacity. In Flett B (ed) SAGE Research Methods Cases - Health. London: SAGE. 

Capstick A, Chatwin J and Ludwin, K (2015) Challenging representations of dementia in contemporary Western fiction film: from epistemic injustice to social participation. In Swinnen A and Schweda M,(eds) Popularising dementia: public expressions and representations of forgetfulness. Aging Studies Volume VI. Bielefeld: transcript Verlag: 206-229.

Capstick, A. (2015) Re-Walking the City: People with Dementia Remember.  In: Richardson T (ed). Walking Inside Out: Contemporary British Psychogeography.  Rowman and Littlefield. 211-225.

Capstick, A., Chatwin, J. and Ludwin, K. (2015) Challenging representations of dementia in contemporary Western fiction film: from epistemic injustice to social participation.  In: Schweda M and Swinnen A (eds). Aging Studies. Special volume on ‘Popularising dementia: public expressions and representations of forgetfulness’.

Litherland, R., Capstick, A. (2014) Involving people with dementia in service development and evaluation. In: Downs M and Bowers B (Eds). Excellence in dementia care: research into practice. 2nd Edition.  Maidenhead: Open University Press.

Capstick, A. (2012) Situated ethics and participatory video. Milne E J and de Lange (eds). A handbook of participatory video: critical challenges and debates. New York: Alta Mira.

Professional Press

Capstick A and Ludwin K (2015) Doing visual archaeology: archive images and participatory film-making. Visual Sociology: Newsletter of the International Sociology Association Visual Sociology Working Group, 10: 8-14.

Capstick A, Ludwin K, Chatwin J, and Walters E R (2016) Participatory video and well-being in long-term care. Journal of dementia care, 24 (1): 26-29.

Conference Proceedings

Capstick A and Ludwin K (28 March 2015): Memories on film: digital storytelling with people in residential dementia care. AHRC Connected Communities Pararchive Conference, University of Leeds

Capstick A (18 March 2015): 'Challenging behaviour' or cultural resistance: the refusal of ‘bare life’ in dementia care.  Social Justice Week, Sheffield Hallam University (invited keynote).

Capstick A, Ludwin K and Chatwin J, (5 November 2014): Using Participatory Video to enhance involvement for people with dementia. NIHR  INVOLVE Conference, Birmingham.

Films

2014 - Memories on film: ten short participatory video films and dissemination dvd from a study funded by the NIHR School for Social Care Research.

Public/Academic/Stakeholder Engagement

Presentations

Capstick A (28 May 2017) Reframing challenging behaviour as cultural resistance: The refusal of bare life in long-term dementia care. International Symposium on Cultural Gerontology: Cultural Narratives, Processes and Strategies in Representations of Age and Aging. University of Graz, Austria

Capstick A (1 September 2016) Constructing people with dementia through images of dyadic care. International Conference on The Image: Face value – personification and identity in a post-digital age.Liverpool John Moores University

Capstick A and Middleton-Green, L (10 May 2016) Breaking repression: acting out the consequences of research ethics committee decisions about ‘vulnerable people’. Everyday ethical dilemmas in healthcare: Power, politics and practices. University of Southampton/ Royal College of Nursing.

Capstick A (7 April 2016) Escaping from long-term dementia care: recollections of home and the unhomely. (invited seminar, on Dementia and everyday life) University of Manchester, Morgan Centre for Research into Everyday Life.

Capstick A (23 February 2016) The view from Room 21: care home life with dementia as a wounded city re-visited. Edge Hill University, Festival of Ideas, Taking it to the Streets (invited symposium).

Capstick A, Richardson T, Bennett L, Bayfield R, Rees, G, Bridger A, Wood P, Collier C and Rose M (2015) Launch of Walking Inside Out: Contemporary British Psychogeography, University of Sheffield, 15 October.

Capstick A, Ludwin K (2015) Digital lifestory-telling and dementia: Linear narratives or lines of flight? International Visual Methods 4 Conference, University of Brighton, 17 September.

Murray M, Downs M, Parveen S, Akhtar A, Capstick A and Mitchell W (2015). Living with dementia – experts by experience. British Science Festival, University of Bradford, 9 September.

Capstick A and Ludwin K (2015) Memories on film: digital storytelling with people in residential dementia care. AHRC Connected Communities Pararchive Conference, University of Leeds, 28 March.

Capstick A (2015) Challenging behaviour or cultural resistance: the refusal of ‘bare life’ in dementia care. Social Justice Week, Sheffield Hallam University (invited keynote), 18 March.

Capstick A, Ludwin K and Chatwin J (2014) Using Participatory Video to enhance involvement for people with dementia. NIHR INVOLVE Conference, Birmingham, 5 November.

Capstick A (2014) Changing Places: Exploring images from visual research with people with dementia. International Conference on The Image, Freie Universitat Berlin, Germany. 30 October.

Capstick A, Ludwin K (2014) ‘Down where all our roads end’: Participatory film-making with women with dementia. Leeds Love Arts Festival, Leeds City Gallery. 22 October.

Capstick A, Ludwin K, Dunnett B (2014) Digital life-storytelling in action workshop. Bradford Science Festival, University of Bradford. 18 October.

Capstick A (2014) Memories on film: Visual research with people with dementia. Margaret Butterworth Forum, Kings College London. 10 September.

Capstick A, Chatwin J, Ludwin K (2014) Participatory film-making with people with dementia in long-term care. Visual In-Sights: Theory, Method, Practice International Conference, Newcastle University. 26 June.

Capstick A, Chatwin J, Ludwin K (2014) Using participatory video to understand diversity among people with dementia in long-term care.  Making Diversity Interventions Count Annual Conference, University of Bradford. 17 June.

Schneider J, Myers T, Capstick A, Bragg M (2014) Who is it who can tell me who I am?' Understanding dementia through art and literature. Panel discussion. Personal Social Service Research Unit LSE Literary Festival Discussion. 25 February. 

Capstick A (2013) Participatory video in long-term dementia care: people with dementia direct the action. UK Dementia Congress, Nottingham. 6 November.

Capstick A (2013) Film-making and social inclusion for people with dementia (invited guest speaker). Arts in Dementia, Age Concern Central Lancashire, Preston. 10 October.

Capstick A (2013) Nothing about us without ethics approval? Contested issues of capacity and consent in participatory video research. International Visual Sociology Conference, Goldsmith’s College. 9 July.

Capstick A (2013) ‘Street-roving’, 1930’s Dalston:  Re-visiting a place before dementia. International Visual Sociology Conference, Goldsmith’s College. 9 July.

Capstick A, Ludwin-Daniels K (2013) Encountering the person in ‘person with dementia’: participatory video work with Henry and Florence. ‘Encounters’, Realities Conference, Morgan Centre, University of Manchester. 4 July.

Capstick A (2013)  Analysing narratives of the service user experience in dementia care. UK Evaluation Society, School of Management, University of Bradford. 25 June.

Capstick A, Ludwin-Daniels K (2013) Cinemeducation and dementia: whatever happened to representation theory? A Narrative Future for Healthcare, King’s College, London. 21 June.

Capstick A, Clegg D (2013) From Room 21:  narratives of liminality, shared space and collective memory in dementia care. A Narrative Future for Healthcare, King’s College, London. 20 June.

Capstick A (2013) Can Participatory Video (PV) enhance social participation and well-being for people with dementia in residential social care? National Institute for Health Research-School for Social Care Research Annual Conference, London. 27 March.

Capstick A (2012) Bay Tree Voices: Inclusive practice in the involvement of people with dementia in practitioner education. Alzheimer Europe Conference, Vienna. 6 October.

Capstick A, Chatwin J (2012) Re-walking the city: people with dementia remember (invited panel presentation). University of Edinburgh, Royal Geographical Society/International Geographical Society Conference. 3-5 July.

Capstick A (2011) Adapting participatory video with people who have disabilities: a case study in situated ethics (panel presentation). 2nd International Visual Methods Conference, Open University, 13-15 September.

Capstick A, Dunnett R, Gallagher P, Jarvis A, Jarvis T, Jureidin D, Peet M (2011) ‘How far we have come together’: findings from a 3-phase strategy to involve people with dementia in practitioner education. ‘Rhetoric or reality: Critical perspectives on service user and carer involvement in education for health and social care. University of Central Lancashire. 22 June.

Capstick A (2010) Places in the heart: psychogeography and dementia. University of Leeds, Psychogeography Network. 15 November.

Capstick A (2010) Places in the heart: nostalgia, psychogeography and late-life dementia. University of Manchester: Vital Signs Research Methods Conference, 9 September.

Capstick A (2010) ‘Confabulation’ in late onset dementia: triangulating censored histories through first-person narrative and literary fiction. University of Nottingham, International Health Humanities Conference. 7 August.

Capstick A (2010) ‘Wait a minute, we’re filming’: using participatory visual methods in a day centre for people with early onset dementia. University of Bradford, School of Health Studies Research, Knowledge Transfer and Educational Innovation Showcase. 22 June.

Capstick A (2009) Film-making as social inclusion. UK Dementia Congress, Harrogate. 4 November.

Capstick A, Bruce E (2009) Invited workshops x 2: Ex Memoria and life history work. Arts and Care Conference, Derby. 20 October.

Capstick A (2009) Participatory video and situated ethics: a pilot study involving people with dementia (panel presentation). 1st International Conference of Visual Methods, University of Leeds. 17 September.

Capstick A (2009) Reducing senility to ‘bare life’. International Association for Health Care Policy in Europe, University of Coventry, Condition critical: Marketisation and health service reform. 19 June.

Capstick A (2009) Using film and narrative biography to resist social amnesia in dementia studies. Research, Knowledge Transfer and Educational Innovation, School of Health Studies, University of Bradford. 29 April.

Capstick A (2009) Where’s the distance in distance learning? Practice knowledge vs academic voice. The connected learner (Distance learning conference), University of Bradford. 23 April.

Capstick A (2009) Cine-med-ucation and the hermeneutics of suspicion (panel presentation). International Media Communications and Cultural Studies Association conference, National Media Museum, and University of Bradford. 15 January.

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