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Taking part in Caregiving HOPE

Individuals who are supporting a person living with dementia

We would like carers to complete a short questionnaire about their experiences three times over 12 months. Further information can be found here - Caregiving HOPE Questionnaire Information Sheet

To be included in the study you must be:

  • A family member (or significant other) of the person with dementia
  • Aged over 18 years
  • Contributing towards providing the support required by the person with dementia
  • Caring for someone with dementia who has a diagnosis of dementia (any type)

If you fit the above criteria, and are interested in helping us, please email Sahdia Parveen ( or Gary Fry (

We are also looking for individuals to interview in more detail about their experiences. Family carers will be interviewed about their motivations for supporting a person with dementia, their willingness to care and preparedness, three times over 12 months. We will also provide carers with a disposable camera to take photos of situations/objects that help them feel prepared and cope better with their care role. These photos will be discussed in the interviews. Carers will receive £20 for each interview. If you are interested in being interviewed, please get in touch and we will send you more information.

If you work with carers

We would be very grateful if you could share this leaflet with all the carers that you work with. Click to download - Caregiving HOPE Questionnaire Poster

There are various other ways in which you could help us! Please see our letter to organisations for further information. Click to download - Caregiving HOPE letter to organisations

If you have any further questions, please contact Sahdia Parveen ( or Gary Fry (