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Caregiving HOPE team

This project is being led by Dr Sahdia Parveen and will receive academic support from:

Caregiving HOPE Panel Members

Our panel has been set up to ensure the research is relevant to the ‘real world’, and makes a difference to both carers and those who may become carers later.

Asma Akhtar

Asma Akhtar

Stakeholder group: Carers (current and past)

Hi, I’m Asma and I used to look after my grandmother.

I met Sahdia when she was looking for carers to take part in her Masters research. I have been supporting her research ever since and look forward to working with you all on the Caregiving HOPE project.

Michelle Mozley

Michelle Mozley

Stakeholder group: Carers (current and past)

Hello everyone, I am Michele. I have joined in this research as my grandmother had dementia (and other ailments) but sadly passed away on 17 April 2014.

When she was first diagnosed she was still living at home with her husband, and I started reading up on the illness. My grandfather died in July 2012 leaving my nan living at home on her own – she was determined not to live in a care home. We arranged for home help to go in twice a day at first then three times. My mother, who didn’t work was her main carer and my auntie who only worked three days, were the ones who looked after her most of the time, but I visited and helped on days I didn’t work, weekends and when I could, due to having a family of my own.

Mohammed Shahid

Mohammed Shahid

Stakeholder group: Carers (current and past)

Shahid supports his mum who was diagnosed with vascular dementia.

Shahid is a community activist in dementia and has worked with the police to raise awareness of dementia. Shahid is passionate about making a difference to South Asian and minority ethnic communities.

Riffat Akram

Riffat Akram

Stakeholder group: Carers (current and past)

Hello, I am Riffat. These days my most important and enjoyable activity is spending time with my granddaughter.

Though my working life started with sewing, but have experience in many fields. From having own business to working in Women's Aid refuge. I return to education in my mid 30s to complete my B.Ed. and then teach.

The most rewarding stage of my life was between 2003 to 1012, following my Mum's diagnoses of Alzheimer’s. I was fortunate to be in the position of being able to live with my parents, and finally really get to know them as the role reversal took place.

Ripaljeet Kaur

Ripaljeet Kaur

Stakeholder group: Community workers

Ripaljeet is a dementia worker with Touchstone in Leeds.

Her role involves raising awareness of dementia and supporting people living with dementia & their carers to access information and mainstream services. Ripaljeet has set up a Leeds BAME Dementia Workers Forum, which consists of BAME dementia workers working within different organisations in Leeds. The role of the forum is to share good practices and expertise to work towards making 'Leeds Dementia Friendly' .

Ripaljeet is also a Dementia Champion and aiming to increase dementia friends from BAME communities.

Carol Peltier

Carol Peltier

Stakeholder group: Community workers

Carol is the development manager for Bradford Older People Alliance, and the engagement arm of the Older People’s Partnership.

Carol's role is supporting older people to have a voice and influence on the shaping and development of health and well-being service in the district working in partnership with stakeholders, and colleagues such as Age UK, Bradford University Dementia Team, Mary Seacole Day Centre and Sharing Voices (mental health).

An example of engagement with older people/service users has been the New Deal for the Bradford district. This involved going out to local community groups and having on occasion difficult conversations about how services can be re-designed and delivered in the future with less financial resources. Another example of community engagement are the BME Dementia Road Shows.

Sandra Barker

Sandra Barker

Stakeholder group: Alzheimer’s Society Monitors

My name is Sandra Barker and I am one of the three monitors for this project from the Alzheimer's Society. More importantly I am a carer helping to look after and support my mother in law who is in the later stages of Alzheimer's Disease.

I am also the Chair of the North Lincolnshire Carers' Partnership so have a lot of contact with other carers, including several who are caring for someone living with dementia.

As well as the formal monitoring role I welcome an opportunity to make use of my experience for the benefit of other carers and future carers.

U Hla Htay

U Hla Htay

Stakeholder group: Alzheimer’s Society Monitors

U Hla Htay is a former carer for his wife with dementia, over 20 years both at home and at a respite care home.

They both participated as Research Network Volunteers, and in various dementia research projects at the University of Bradford, UCL, KCL, the Mental Health Foundation.

He is a Brain Tissue Committee member at KCL and Newcastle University, and a dementia campaigner at national and  international levels (including the WHA European Region, and in Myanmar). He is a member of JDR and DAA, and has given talks on the dementia care journey from early onset to end-stage for a wide range of audiences.

Wendy Mitchell

Wendy Mitchell

Stakeholder group: Alzheimer’s Society Monitors

Hello, my name is Wendy and I was diagnosed with Young Onset Dementia on the 31st July 2014.

Since diagnosis I have become a research network volunteer for the Alzheimer’s society, which enables me to be involved with researchers and hear and share their passion for research.

Fionnuala (Fin) Kelly

Fionnuala (Fin) Kelly

Stakeholder group: Non carers (representing the future carer aspect)

Hello! I am Fin, a final year Clinical Sciences student at The University of Bradford.

I am delighted to be a member of the panel as I have a keen interest in working in healthcare in the future. I believe the relationship between carers, healthcare staff and the person with dementia is incredibly important for the wellbeing of all involved.

I hope to learn more about carers and what they do and how they can be best supported in their role.

Seeart Shirazi

Seeart Shirazi

Stakeholder group: Non carers (representing the future carer aspect)

Hi everyone, my name is Seerat and I am currently a second year Clinical Sciences student.

I hope to either go on to study Medicine or pursue a career in research, so I am thoroughly enjoying the project so far. Outside of my studies, I enjoy painting, drawing, literature and the gym - that is, when I actually go!

Alex Happs

Alex Happs

Stakeholder group: Non carers (representing the future carer aspect)

Hello! I am a Clinical Science student at the University of Bradford with experience in care in both York and Leeds Teaching Hospitals NHS trusts.

I have first hand experience in caring for people with dementia in the hospital environment and also experience of family members living with it.

Through meeting Sahdia and other members of the team I became a Dementia Friend and I am excited to see where the Caregiving HOPE project will go!

Sahdia Parveen

Sahdia Parveen

Stakeholder group: Researchers

Hello, I’m Sahdia and I’m leading the Caregiving HOPE study.

Having been a young carer myself, I am very interested in how carers cope and best ways in how we can support them. I am also interested in how willing people feel about providing care at home and how able/prepared they feel.

Jan Oyebode

Jan Oyebode

Stakeholder group: Researchers

Hello, I am a Clinical Psychologist and Professor of Dementia Care at the University of Bradford.

I have worked as a clinical psychologist with older people, including people with dementia and their families, in the National Health Service in Merseyside, Newcastle-upon-Tyne, and Birmingham.

My research interests focus on living with dementia in the community, and relationships in families where a member has dementia. I am especially interested in young onset dementia and in cultural influences on dementia care.

Val Morrison

Val Morrison

Stakeholder group: Researchers

Val Morrison is a Health Psychologist and professor of health psychology at Bangor University, where she supervised Sahdia’s Masters and Doctorate research.

Val’s research seeks to identify social, cultural, cognitive, and emotional predictors of chronic illness outcomes (e.g. function, wellbeing) for those directly and indirectly affected (i.e. patients/partners/carers), in order to develop, test and hopefully implement effective interventions.

Rick Fortinsky

Rick Fortinsky

Stakeholder group: International collaborator

Rick Fortinsky is a medical sociologist and professor at the Center on Aging and Department of Medicine, University of Connecticut in the USA.

Rick’s research interests include testing the value of health and social care services that aim to help older adults living at home with dementia and their family carers, and improving the lives of older adults after they experience a hip fracture.

Rick is an international collaborator on the project, and is also Sahdia’s mentor.