Experts by Experience
The active involvement of people with dementia, their families, careworkers and volunteers is vital in all our work.
We have an active Experts by Experience panel for those who have expressed an interest in being involved in activities such as
- Teaching, assessing or evaluating the courses we provide
- Advising us on current or future research studies
- Contributing to practice development initiatives
- Promoting public awareness and challenging stereotypes
- Developing dementia-friendly communities
Everyone is welcome to join the Experts by Experience panel, and we are committed to involving people with dementia across the whole spectrum from diagnosis to long-term care. We are particularly keen to recruit people whose lives have been touched by dementia but whose voices are less often heard, including women, people over 80, members of the black, Asian, Eastern European and other local communities, and members of LGBT groups.
We hold regular events at the University, but we are also happy to visit panel members where they live or spend time in the community. We send all panel members a twice yearly newsletter with information about subjects such as student achievements, opportunities for involvement and forthcoming events.
Meet some of our Experts by Experience
Christine advises us on the use of life history methods, reminiscence work and other activities for people with dementia.
Atiq helps with advice on research involving people from community groups in the Bradford area.
Cath helped us to make a film at the day centre she attended. The film is now used to teach students.
Bob was a tirelessly hard-working member of the Faculty of Health Studies’ Service User and Carer Group, and the School of Dementia Studies Experts by Experience Group. I first met Bob in 2008, when I joined the local Alzheimer’s Society branch committee. Bob was already a member by then, having promised his wife, Bonnie, when she developed dementia, that he would continue working with the Society after she died in order to ‘give something back’ for all the support they had received.