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Irfan Hassan

Technology Integrated Health Management for dementia

6 June 2019

I was delighted to welcome Irfan Hassan to the DHEZ on 6th June 2019.  He came to talk to us about the Technology Integrated Health Management (TIHM) for Dementia project at Surrey & Borders NHS Trust.  And what a fantastic overview of the TIHM for dementia programme it was – inspiring to hear about the successes of this NHS-driven technology project with users at its heart.

Irfan took us on a journey through TIHM for dementia: a collaboration between Surrey & Borders Partnership NHS FoundationTrust (SABNHSFT), University of Surrey, business and the Alzheimer’s Society.

The project has deployed a series of internet enabled devices in people’s home to enable remote health monitoring and support early interventions aimed at improving the lives of people with dementia.

It has run in two phases, and its main objectives are:

TIHM for Dementia
to improve the lives of people with dementia to support people with dementia to stay safe and well in their own homes to reduce hospital and care home admissions to relieve the stress on carers

TIHM for dementia: Phase 1

In Phase 1 of the project 400 people were recruited on to a randomised control trial for 6 months.  A network of devices was deployed in people’s homes to track physiological and environmental data.  This deployment was worked through in advance with a trusted user group in a “Living Lab” – to find out what works and what people were prepared to use.  It was clear from Irfan that this played a very important part in developing the project: these co-design principles guided the project, as did working in a multi-disciplinary team, testing devices first in a living laboratory and then deploying technology in people’s homes.

Phase I TIHM for dementia
TIHM Phase 2

How does TIHM for dementia work?

Having tested the sensing and monitoring devices in the Living Laboratory, these devices are then installed in people’s homes.  The TIHM platform incorporates the data storage, integration tools and analytics which are then presented in an integrated dashboard which enables clinicians to visualise the data and provide 24/7 monitoring and support.

Find out more >> Enshaeifar et al. (2018) Health management and pattern analysis of daily living activities of people with dementia using in-home sensors and machine learning techniques.  PLoSONE 13(5):1-20

How does TIHM work

TIHM for dementia: early outcomes

Irfan outlined the early findings of Phase 1 of the TIHM study, and listed some of the positive effects that people with dementia experienced: reduction in neuropsychiatric symptoms (including depression, agitation, anxiety and irritability); and the “peace of mind” experienced by their carers.  One of the noteworthy findings was the result of developing machine learning algorithms to alert clinicians to signs of agitation and urinary tract infections (significant causes of unplanned hospital admissions in people with dementia).  This work will be developed further in Phase 2 of the programme.

This video captures how a person with dementia felt when taking part in the TIHM for dementia project >>

This video captures how carers felt more supported on the TIHM for dementia project>>

 

 

 

TIHM impact

Reflecting on Irfan’s talk – it is apparent that public engagement has been central to the progress that TIHM for dementia has made.  The programme team have worked very closely with end-users of the sensing and monitoring devices – the Trusted User team has clearly had an impact on how well the technology has been deployed and accepted by its users.

It is also noteworthy that the TIHM for dementia programme has been covered extensively in the media: reminding us to make sure we build a clear communications plan for our proposed projects.

TIHM in news

A big thank you to Irfan and the TIHM for dementia team!

I loved listening to the unfolding TIHM for dementia experience summarised by Irfan – it is always invigorating to hear about service improvement developments, and the close work between the people with dementia, their carers and the NHS, Universities and business emphasises to me that delivering new models of care is a team effort.

Well done to all, and good luck with Phase 2.

I can’t help but think that Bradford would be a great place for you to collaborate with in your search for a further 2-3 sites across the UK.

group photo for TIHM talk

Some additional resource that you may find useful:

 

Home devices deliver data for dementia care

https://www.bmj.com/content/bmj/361/bmj.k1855.full.pdf

 

Internet of Things for dementia care

https://core.ac.uk/download/pdf/84589092.pdf

 

TIHM for dementia: Kings Fund

https://www.kingsfund.org.uk/sites/default/files/media/Ramin_Nilforooshan.pdf